Yay! Today is Glitter for Lipedema Day

Hi friends! Many of us have been gearing up for today (December 18), the first Glitter for Lipedema Day.  This fun event was set up by the admins of the Lipedema Friends International Facebook group. For me, I spent more time thinking of what I would do, and being nervous about it than actually justContinue reading “Yay! Today is Glitter for Lipedema Day”

We’re in the Home Stretch of the Holidays: Ways to Simplify and Reduce Stress this Week for YOU!

Hi friends! Happy holidays!  As we wrap up this holiday season and head towards the new year, we know this particular week can be one of super stress.  Between running to numerous events for kids and family, work parties and church gatherings, volunteering and on and on and on, we folks with conditions like lipedemaContinue reading “We’re in the Home Stretch of the Holidays: Ways to Simplify and Reduce Stress this Week for YOU!”

Gut Health and Lipedema – They’re Related: A Book Review for You!

Hi friends! The most profound discovery is realizing the depth of what we don’t know. I’ve been wanting to learn about gut health for a while but have been putting off reading yet another really technical paper (I do that plenty with lipedema papers).  But finally, a book came out that simplifies things about gutContinue reading “Gut Health and Lipedema – They’re Related: A Book Review for You!”

Mental Health and Lipedema: Grief over Loss of Health and Body Image Changes

Hi friends, Right now, the research on the physical aspects of having lipedema is exploding.  I feel there is still a pretty big gap in supporting patients’ mental health, however. In an earlier post about Body Grief, I gave some feelings you as a lipedema patient might be experiencing and some strategies to cope withContinue reading “Mental Health and Lipedema: Grief over Loss of Health and Body Image Changes”

What’s Your Super Power? You Are More than your Lipedema!

Hi friends! I’m in the office today, working on the book about Lipedema Advocacy today.  As I’ve been researching, I’ve had so many good ideas about how each lipedema patient could contribute to a unified advocacy campaign. I’m thinking of the friends I know in the community with a very wide variety of skills.  HereContinue reading “What’s Your Super Power? You Are More than your Lipedema!”

Health and Body Grief: Coping and Embracing the New Normal with Self-Love

Hi friends! This is part of a little series I’m conducting on mental health.  I’ll be posting soon on a mult-part interview I’m conducting with the CEO of the Grief Recovery Center that I think will be helpful, so stay tuned for that. Living with lipedema can be emotionally challenging, especially when it comes toContinue reading “Health and Body Grief: Coping and Embracing the New Normal with Self-Love”

How to Manage Lipedema Flare-Ups: Tips and Tricks from Experts and Patients

Hi friends! The holidays are amongst us, which means we’re eating all kinds of foods not in our normal diets, we’re probably experiencing some form of stress from shopping, money, family visits, and so on.  And for a lot of us, the weather is changing.  For me, I have more challenges when I’m in aContinue reading “How to Manage Lipedema Flare-Ups: Tips and Tricks from Experts and Patients”

I’m Finally Telling the Story of Why I am a Lipedema Awareness Advocate – A Free Read for You!

Hi friends! I’ve just finished the first draft of my latest book called, Empowered Legs: A Guide to Lipedema Advocacy and Awareness. This book is really, really good at taking a big picture look of all the ways our collective community can work to make change, find treatments, and get insurance approval.  However, at the beginningContinue reading “I’m Finally Telling the Story of Why I am a Lipedema Awareness Advocate – A Free Read for You!”

Lipedema Friendly Products – Dressing Aids and Shoe Horns. What’s your Advice?

Hi friends! On the development of footwear project, we have entered the stage where the LegsLikeMine team are using a team of fit testers to wear our shoes around and give us feedback on the fit.  The goal is to make sure there aren’t hidden gotcha’s like, the shoes didn’t work with ankle cuffing, theyContinue reading “Lipedema Friendly Products – Dressing Aids and Shoe Horns. What’s your Advice?”

Interesting Find: Data on How Many Books and Products are on Amazon with the Words Lipedema or Lipoedema vs. some Men’s Conditions

Hi friends, Is anybody out there a little geeky like me and you go down random data rabbit holes sometimes? I’m doing some research today to see how much lipedema in the media has changed since I first wrote Jeans on a Beach Day.  At the time I published it, in April 2022, I onlyContinue reading “Interesting Find: Data on How Many Books and Products are on Amazon with the Words Lipedema or Lipoedema vs. some Men’s Conditions”