Hi friends! My husband and I recently took an impromptu trip to a local museum he’d never visited and we had such a good time. When we got home, I
The Critical Need for an ICD Code for LipedemaThe Critical Need for an ICD Code for Lipedema
Hi friends! Lipedema, a chronic and progressive condition affecting mostly women, has long been misunderstood and misdiagnosed. One major reason for this is the lack of a specific International Classification
LipQoL: Your Voice, Your Story – How This New Survey is Empowering Lipedema WarriorsLipQoL: Your Voice, Your Story – How This New Survey is Empowering Lipedema Warriors
Hey there, Lipedema Warriors! Today, I want to chat with you about something super important – tools like quality of life surveys, and specifically, a new one called the LipQoL
Uniting for Change: The Power of the Lipedema CommunityUniting for Change: The Power of the Lipedema Community
Hi friends! Living with lipedema can be a challenging and often isolating experience. Many patients struggle for years to get a proper diagnosis, let alone find effective treatments or insurance
We’re Having a Heat Wave! Tips for Beating the Heat while Still Using CompressionWe’re Having a Heat Wave! Tips for Beating the Heat while Still Using Compression
Whew Ya’ll, it’s HOT! As a fellow lipedema patient, I know firsthand how challenging summer can be when you’re dealing with swelling and the need for compression. The heat can
When Lipedema Leaves You Feeling LostWhen Lipedema Leaves You Feeling Lost
Hey there, lovely ladies! If you’ve recently been diagnosed with lipedema, those first few days and weeks can feel like a whirlwind of emotions. Trust me, I’ve been there myself
Lipedema Starts Young: 57% First Notice Symptoms as TeensLipedema Starts Young: 57% First Notice Symptoms as Teens
Hi friends! Have you ever heard of lipedema? If not, you’re not alone. This chronic condition, primarily affecting women, is often misunderstood and underdiagnosed. But the statistics are staggering –
June 11 is World Lipedema Day – Share Your Story. Amplify our VoicesJune 11 is World Lipedema Day – Share Your Story. Amplify our Voices
Hi Friends! Today is World Lipedema Day. Share your story. Why We Need to Fight for Lipedema Awareness June 11th marks World Lipedema Day, a crucial reminder of the invisible
Understanding Lipedema, Lymphedema, and Dercum’s DiseaseUnderstanding Lipedema, Lymphedema, and Dercum’s Disease
Hi friends, I’ve noticed that a lot of people get these three diseases confused because they are so interrelated. I thought I’d do a post talking about their similarities and
Speaking the Same Language: Comparing, “Pears to Pears” in Lipedema Diagnosis and ResearchSpeaking the Same Language: Comparing, “Pears to Pears” in Lipedema Diagnosis and Research
Hi friends! More work is happening to get to a full research environment to find proper treatments and lead to a cure for lipedema. I’m going to share with you
