About LegsLikeMine

Who is LegsLikeMine? 

Based in Yukon, Oklahoma, USA, Susan O’Hara is the founder and heart behind LegsLikeMine — a platform built to raise awareness, share lived experiences, and connect others touched by lipedema.

Susan’s journey with lipedema began in 2001 after the birth of her first child. Over the years, the condition progressed through various hormonal changes and life stresses, just as it does for many women worldwide. Like so many others, she spent years searching for answers without even knowing what questions to ask — enduring MRIs, knee surgeries, X‑rays, and even tendonitis before a doctor finally asked, “Who’s treating your lipedema?”

That moment changed everything. Once Susan had a name for her condition, she dedicated herself to learning more — connecting with specialists, exploring effective self‑care strategies, and discovering the power of compression and massage therapy. Along the way, she also faced practical challenges, from finding properly fitting boots and shoes to navigating the everyday realities of life with lipedema.

Today, LegsLikeMine stands as both a personal mission and a message of hope. Through education, storytelling, and community connection, Susan is helping redefine what strength, beauty, and empowerment look like for people living with lipedema.

LegsLikeMine is a work of passion and necessity. Susan is also the founding president of the American Lipedema Association, a nonprofit dedicated to raising awareness about lipedema, connecting the lipedema community, educating with trusted resources, and advocating for better care.

Copyright 2020-2026 LegsLikeMine, LLC.