Hi friends! Have you ever heard of lipedema? If not, you’re not alone. This chronic condition, primarily affecting women, is often misunderstood and underdiagnosed. But the statistics are staggering – according to the Lipedema Foundation Registry Report, a groundbreaking survey of over 500 individuals with lipedema, a whopping 57% reported experiencing their first symptoms betweenContinue reading “Lipedema Starts Young: 57% First Notice Symptoms as Teens”
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The 17-Year Delay: Shedding Light on the Diagnostic Odyssey of Lipedema Patients
Hi friends, As I prepare for Lipedema Awareness Month, I’ve been reviewing a document called the First Look Report from the Lipedema Foundation. These are findings that the LF discovered as they analyzed the Lipedema Registry Survey. The finding that continues to blow my mind is that women go on average 17 years with symptomsContinue reading “The 17-Year Delay: Shedding Light on the Diagnostic Odyssey of Lipedema Patients”
An Open Letter to All Medical School Deans and Curriculum Committees: Teach Lipedema
Dear Esteemed Deans, As leaders in shaping the future of healthcare, you hold the power to transform the lives of millions of women worldwide who are silently suffering from a condition that has long been overlooked and misunderstood – lipedema. Lipedema, a chronic disorder characterized by the abnormal accumulation of fat in the legs andContinue reading “An Open Letter to All Medical School Deans and Curriculum Committees: Teach Lipedema”
Dismissing Known Lipedema Symptoms as Obesity Violates the Hippocratic Oath
Hi friends, this post is intended to share with physicians and healthcare providers, whom you’ve worked with to get a lipedema diagnosis, and have been ignored or gaslighted, despite providing resources such as the Clinician’s Guide to Lipedema from the Lipedema Foundation. Best of luck to you! Remember if you aren’t being listened to especiallyContinue reading “Dismissing Known Lipedema Symptoms as Obesity Violates the Hippocratic Oath”
The Power of Advocacy: Uplifting the Lipedema Community
Hi friends! As you can tell, I’m gearing up for Lipedema Awareness Month, and I encourage you…ask you, to participate using your skills, interests, and reach. As someone living with lipedema, I know firsthand the challenges this chronic condition can bring. The physical and emotional impacts can be overwhelming, but there is strength in numbers.Continue reading “The Power of Advocacy: Uplifting the Lipedema Community”
Lipedema 101: What is Lipedema?
Hi friends, With our condition affecting around 11% of women, the chances are you know someone who has lipedema. It might be your mom, sister, daughter, a patient or a friend. Have you ever seen someone with large, protruding areas of fat on their legs or arms that seems disproportionate to the rest of theirContinue reading “Lipedema 101: What is Lipedema?”
Yay! Today is Glitter for Lipedema Day
Hi friends! Many of us have been gearing up for today (December 18), the first Glitter for Lipedema Day. This fun event was set up by the admins of the Lipedema Friends International Facebook group. For me, I spent more time thinking of what I would do, and being nervous about it than actually justContinue reading “Yay! Today is Glitter for Lipedema Day”
Lipedema in the News: A Story from Los Angeles that Went to 854,000 YouTube Subscribers
Hi friends, I’m sharing a news story that I stumbled across from YouTube, originally published a few years back from Fox News. The more we have lipedema in the news, the more folks can be exposed, the more possibly get that proper diagnosis early along with treatment to save mobility and prevent progression and allContinue reading “Lipedema in the News: A Story from Los Angeles that Went to 854,000 YouTube Subscribers”
So, I Wrote a 300 Page Book of Lipedema Lady Art in One Day, and It’s Pretty Great!
Hi friends! To get this party started, if you’d like to see the book and even purchase a coffee table version, here’s the link to the book I’m talking about: https://amzn.to/3Nrm3yC Now we can start. I’ve been researching an upcoming set of posts about how society can support women with lipedema. One of the ideasContinue reading “So, I Wrote a 300 Page Book of Lipedema Lady Art in One Day, and It’s Pretty Great!”
Why Are Awareness Campaigns Important? Awareness is Especially Important for Lipedema!
Hi friends! June is Lipedema Awareness Month, and many of my colleagues in the community are doing all kinds of fun things to spread awareness. My goal is to spread awareness OUTSIDE of our community in an effort to get to doctors and women who may have the disease but aren’t aware. We see soContinue reading “Why Are Awareness Campaigns Important? Awareness is Especially Important for Lipedema!”
