Lipedema Starts Young: 57% First Notice Symptoms as Teens

Hi friends! Have you ever heard of lipedema? If not, you’re not alone. This chronic condition, primarily affecting women, is often misunderstood and underdiagnosed. But the statistics are staggering – according to the Lipedema Foundation Registry Report, a groundbreaking survey of over 500 individuals with lipedema, a whopping 57% reported experiencing their first symptoms betweenContinue reading “Lipedema Starts Young: 57% First Notice Symptoms as Teens”

Lipedema 101: What is Lipedema?

Hi friends, With our condition affecting around 11% of women, the chances are you know someone who has lipedema.  It might be your mom, sister, daughter, a patient or a friend.  Have you ever seen someone with large, protruding areas of fat on their legs or arms that seems disproportionate to the rest of theirContinue reading “Lipedema 101: What is Lipedema?”

Yay! Today is Glitter for Lipedema Day

Hi friends! Many of us have been gearing up for today (December 18), the first Glitter for Lipedema Day.  This fun event was set up by the admins of the Lipedema Friends International Facebook group. For me, I spent more time thinking of what I would do, and being nervous about it than actually justContinue reading “Yay! Today is Glitter for Lipedema Day”

So, I Wrote a 300 Page Book of Lipedema Lady Art in One Day, and It’s Pretty Great!

Hi friends! To get this party started, if you’d like to see the book and even purchase a coffee table version, here’s the link to the book I’m talking about:  https://amzn.to/3Nrm3yC Now we can start.  I’ve been researching an upcoming set of posts about how society can support women with lipedema.  One of the ideasContinue reading “So, I Wrote a 300 Page Book of Lipedema Lady Art in One Day, and It’s Pretty Great!”

Why Are Awareness Campaigns Important? Awareness is Especially Important for Lipedema!

Hi friends! June is Lipedema Awareness Month, and many of my colleagues in the community are doing all kinds of fun things to spread awareness.  My goal is to spread awareness OUTSIDE of our community in an effort to get to doctors and women who may have the disease but aren’t aware. We see soContinue reading “Why Are Awareness Campaigns Important? Awareness is Especially Important for Lipedema!”

Are You a Lipedema Lady who is Addicted to Sugar?

Hi friends! I continue to tackle topics that may help the overall lipedema community.  And the next one is tough. I’m starting work on my next book, “SUGAR MAMA:  A book about sugar addiction and diet, the tabu subjects for lipedema patients who’ve been told it’s not our fault.” I’m going to be telling myContinue reading “Are You a Lipedema Lady who is Addicted to Sugar?”

OMG! It. Is. Here! My 2023 Aquatard Swimsuit Has Arrived! I LOVE IT!

Ooh friends, I’m so excited! My aquatard from Juno Active is here so now I can move forward with shooting the movement photos for my new book, Aquatherapy for Lipedema, to be released March 17, 2023 on Amazon.  I’ve owned another color of suit from Juno for YEARS now and the thing will just notContinue reading “OMG! It. Is. Here! My 2023 Aquatard Swimsuit Has Arrived! I LOVE IT!”

Answer to a Frequently Asked Question: Does Compression Really Work? Also, a New Research on Compression is Out.

Hi Friends, I know so many ladies with lipedema and lymphedema.  We are all at various stages of trying to figure out how to manage, or even ignore our lipedema symptoms and hope they’ll go away.  A question I get a lot from those who are just learning about lipedema involves the use of compression. Continue reading “Answer to a Frequently Asked Question: Does Compression Really Work? Also, a New Research on Compression is Out.”

Our Footwear Team is Really Working to Invent Shoes that Truly Fit Us! Fit Models are in Effect!

Hi friends! Wow has January 2023 been crazy for me personally and professionally.  The biggest news on the LegsLikeMine front is that our Footwear Technician and Footwear Designer have been super hard at work, really digging into the challenges we have as lipedema patients and taking a second, and third, look at the design weContinue reading “Our Footwear Team is Really Working to Invent Shoes that Truly Fit Us! Fit Models are in Effect!”

It Took Me Four Years of Thinking I Might Have Cancer Before I Discovered I “Just” Have Lipedema

I’m guessing so many of you have similar stories.  For me, I left the hospital after delivering my first child, with legs that would never be the same.  After some time on fertility hormones, then using progesterone during pregnancy, my legs had developed into tree trunks.  With the birth of my second child, they grewContinue reading “It Took Me Four Years of Thinking I Might Have Cancer Before I Discovered I “Just” Have Lipedema”