Hi friends! Living with lipedema can be a challenging and often isolating experience. Many patients struggle for years to get a proper diagnosis, let alone find effective treatments or insurance
Author: LegsLikeMine

We’re Having a Heat Wave! Tips for Beating the Heat while Still Using CompressionWe’re Having a Heat Wave! Tips for Beating the Heat while Still Using Compression
Whew Ya’ll, it’s HOT! As a fellow lipedema patient, I know firsthand how challenging summer can be when you’re dealing with swelling and the need for compression. The heat can

When Lipedema Leaves You Feeling LostWhen Lipedema Leaves You Feeling Lost
Hey there, lovely ladies! If you’ve recently been diagnosed with lipedema, those first few days and weeks can feel like a whirlwind of emotions. Trust me, I’ve been there myself

Lipedema Starts Young: 57% First Notice Symptoms as TeensLipedema Starts Young: 57% First Notice Symptoms as Teens
Hi friends! Have you ever heard of lipedema? If not, you’re not alone. This chronic condition, primarily affecting women, is often misunderstood and underdiagnosed. But the statistics are staggering –

June 11 is World Lipedema Day – Share Your Story. Amplify our VoicesJune 11 is World Lipedema Day – Share Your Story. Amplify our Voices
Hi Friends! Today is World Lipedema Day. Share your story. Why We Need to Fight for Lipedema Awareness June 11th marks World Lipedema Day, a crucial reminder of the invisible

Understanding Lipedema, Lymphedema, and Dercum’s DiseaseUnderstanding Lipedema, Lymphedema, and Dercum’s Disease
Hi friends, I’ve noticed that a lot of people get these three diseases confused because they are so interrelated. I thought I’d do a post talking about their similarities and

Speaking the Same Language: Comparing, “Pears to Pears” in Lipedema Diagnosis and ResearchSpeaking the Same Language: Comparing, “Pears to Pears” in Lipedema Diagnosis and Research
Hi friends! More work is happening to get to a full research environment to find proper treatments and lead to a cure for lipedema. I’m going to share with you

I Validate Your Pain: It’s One of the Biggest Symptoms of LipedemaI Validate Your Pain: It’s One of the Biggest Symptoms of Lipedema
Hi friends! Today, I want to address a topic that is often overlooked or misunderstood, can’t be seen and maybe…(?) isn’t always believed. PAIN – the physical pain experienced by

Overdue Progress: Elevating Investment in Women’s HealthOverdue Progress: Elevating Investment in Women’s Health
Hi friends! Have you ever heard of lipedema? It’s a chronic condition that causes an abnormal buildup of fat cells in the legs and arms, leading to pain, immobility, and

The 17-Year Delay: Shedding Light on the Diagnostic Odyssey of Lipedema PatientsThe 17-Year Delay: Shedding Light on the Diagnostic Odyssey of Lipedema Patients
Hi friends, As I prepare for Lipedema Awareness Month, I’ve been reviewing a document called the First Look Report from the Lipedema Foundation. These are findings that the LF discovered