Hi friends! Lipedema, a chronic and progressive condition affecting mostly women, has long been misunderstood and misdiagnosed. One major reason for this is the lack of a specific International Classification of Diseases (ICD) code. Having a unique ICD code for lipedema is vital for several reasons. First, an ICD code would greatly improve theContinue reading “The Critical Need for an ICD Code for Lipedema”
Tag Archives: advocacy
Uniting for Change: The Power of the Lipedema Community
Hi friends! Living with lipedema can be a challenging and often isolating experience. Many patients struggle for years to get a proper diagnosis, let alone find effective treatments or insurance coverage. But there’s strength in numbers, and it’s time for the lipedema community to come together and make our voices heard! In recent years, we’veContinue reading “Uniting for Change: The Power of the Lipedema Community”
June 11 is World Lipedema Day – Share Your Story. Amplify our Voices
Hi Friends! Today is World Lipedema Day. Share your story. Why We Need to Fight for Lipedema Awareness June 11th marks World Lipedema Day, a crucial reminder of the invisible struggle faced by countless individuals worldwide, predominantly women, living with this chronic and debilitating condition. Lipedema, a disorder of the connective tissue, is often misunderstood,Continue reading “June 11 is World Lipedema Day – Share Your Story. Amplify our Voices”
What’s Your Super Power? You Are More than your Lipedema!
Hi friends! I’m in the office today, working on the book about Lipedema Advocacy today. As I’ve been researching, I’ve had so many good ideas about how each lipedema patient could contribute to a unified advocacy campaign. I’m thinking of the friends I know in the community with a very wide variety of skills. HereContinue reading “What’s Your Super Power? You Are More than your Lipedema!”
