Answer to a Common Question: How Can I Still Travel with Lipedema or Lymphedema?

Well hello friends! I wanted to make a post that I can refer to when our sisters reach out to me when they’re having concerns, anxiety, or general questions about how I travel so much with Lipedema and Lymphedema.  In a normal year, I take several cross-country road trips, at least one international trip, andContinue reading “Answer to a Common Question: How Can I Still Travel with Lipedema or Lymphedema?”

Can Your Underwear be Harming You? Maybe.

I thought I’d never write a blog post about underwear, but then I got diagnosed with Lipedema and started Complete Decongestive Therapy.  According to Lipedema.net, CDT is made up of four parts:  Massage, Compression, Exercise and Skincare. Our ‘massage’ is really Manual Lymphatic Drainage, and it helps reduce swelling and even pain.  I go toContinue reading “Can Your Underwear be Harming You? Maybe.”

Last Sunday Lipedema Friendly Outfits – January 2022, BONUS Round!

I had so much fun shopping and getting things ready that I decided to do a second outfit this month.  In honor of Valentines Day, I dediced to use something with a little pop of red, and I straight  up copied this from an Amazon ad. The main ad – I like it better withContinue reading “Last Sunday Lipedema Friendly Outfits – January 2022, BONUS Round!”

Last Sunday Lipedema-Friendly Outfits – January 2022

Greetings and Salutations and BRRRR!  This is our first segment in a series where we find fabulous outfits for a price regular people can pay, off of Amazon, that are lipedema friendly and incorporate compression into the look OR that are great at focusing the attention up instead of down at our legs. I’m planningContinue reading “Last Sunday Lipedema-Friendly Outfits – January 2022”

Prepping for Last Sunday Lipedema-Friendly Outfits is SO Much Fun!

Getting ready for my new Last Sunday Lipedema-Friendly outfits series is turning out to be a lot more fun than I’d thought.  First of all, I’m going to go broke if I’m not careful, and second, I’m going to need to clean out my closet soon.  I’ve needed to get rid of tight trousers forContinue reading “Prepping for Last Sunday Lipedema-Friendly Outfits is SO Much Fun!”

What Swimming Has Done for Me Personally

Hi everyone! It’s January here in Oklahoma, USA and our temperatures sway from freezing one day, to days like today when it’s about 60 degrees F after work.  I’ve got our still-new-to-me pool heating up to as close to 80 as I can get it, and in a bit, I’ll jump in and swim –Continue reading “What Swimming Has Done for Me Personally”

Is it Time to Say Goodbye to my Drag Queen Shoes Yet? mmmmm…Maybe

Dear Susan: Wear these. In fact, check Amazon monthly to see if they have other colors. (These are so cute and unique that ladies will literally stop you in public to ask about these fun, supportive, and totally walkable shoes.  Do it, but be sure to take them off when you go through TSA precheckContinue reading “Is it Time to Say Goodbye to my Drag Queen Shoes Yet? mmmmm…Maybe”

Resolutions Schmezolutions (it’s 2022 and I’m not doing it anymore!)

You can tell when a woman has accepted the hand she’s been dealt and is ready to live her best life.  It dawned on me on New Year’s Eve, as we welcomed 2022 in, that this has happened to me.  I’m now invoking Schmezolutions instead of resolutions for this year.  These are things I wasContinue reading “Resolutions Schmezolutions (it’s 2022 and I’m not doing it anymore!)”

2021 was an epic year as a lipedema patient

Happy New Year friends! 2021 was an epic year for a lipedema patient.  I saw so many of us get insurance approval and start surgical treatment, improving and testing ways of eating that work for us, and so many cute clothes came out for us – finally! One of the things I’ve realized is that,Continue reading “2021 was an epic year as a lipedema patient”

June is Lipedema Awareness Month!

It seems like every month is an awareness month for something or another, but Lipedema awareness month is special and different than any other awareness campaign, in my humble opinion, because in our case, awareness can result in real and significant, life-changing action. The reason is our disease goes undiagnosed for years-decades, for some, becauseContinue reading “June is Lipedema Awareness Month!”