Yay! Today is Glitter for Lipedema Day

Hi friends! Many of us have been gearing up for today (December 18), the first Glitter for Lipedema Day.  This fun event was set up by the admins of the Lipedema Friends International Facebook group. For me, I spent more time thinking of what I would do, and being nervous about it than actually justContinue reading “Yay! Today is Glitter for Lipedema Day”

Lipedema in the News: A Story from Los Angeles that Went to 854,000 YouTube Subscribers

Hi friends, I’m sharing a news story that I stumbled across from YouTube, originally published a few years back from Fox News. The more we have lipedema in the news, the more folks can be exposed, the more possibly get that proper diagnosis early along with treatment to save mobility and prevent progression and allContinue reading “Lipedema in the News: A Story from Los Angeles that Went to 854,000 YouTube Subscribers”

So, I Wrote a 300 Page Book of Lipedema Lady Art in One Day, and It’s Pretty Great!

Hi friends! To get this party started, if you’d like to see the book and even purchase a coffee table version, here’s the link to the book I’m talking about:  https://amzn.to/3Nrm3yC Now we can start.  I’ve been researching an upcoming set of posts about how society can support women with lipedema.  One of the ideasContinue reading “So, I Wrote a 300 Page Book of Lipedema Lady Art in One Day, and It’s Pretty Great!”

Why Are Awareness Campaigns Important? Awareness is Especially Important for Lipedema!

Hi friends! June is Lipedema Awareness Month, and many of my colleagues in the community are doing all kinds of fun things to spread awareness.  My goal is to spread awareness OUTSIDE of our community in an effort to get to doctors and women who may have the disease but aren’t aware. We see soContinue reading “Why Are Awareness Campaigns Important? Awareness is Especially Important for Lipedema!”

Are You a Lipedema Lady who is Addicted to Sugar?

Hi friends! I continue to tackle topics that may help the overall lipedema community.  And the next one is tough. I’m starting work on my next book, “SUGAR MAMA:  A book about sugar addiction and diet, the tabu subjects for lipedema patients who’ve been told it’s not our fault.” I’m going to be telling myContinue reading “Are You a Lipedema Lady who is Addicted to Sugar?”

Fresh for Spring! Lipedema Friendly Outfit Idea

HI friends! My mom snapped a pic of me the other day when I took her to a doctor’s appointment, wearing a real dress that I really ordered for myself.  I’ve gotten a ton of compliments on this little outfit so I thought I’d share it.  This is from a company I’ve been wearing aContinue reading “Fresh for Spring! Lipedema Friendly Outfit Idea”

I finally reviewed the Hip Hugger for the booty gap in all our jeans

Hi friends! A long time ago, in a galaxy far, far away, I bought a Hip Hugger device to test.  This device is advertised as, ‘The no-buckle, no-bulk, no-front belt.” The packaging also says, “Bye bye peek-a-booty!”  Cute. So I did a little test of this guy.  Here’s my review. It was really hard toContinue reading “I finally reviewed the Hip Hugger for the booty gap in all our jeans”

Answer to an FAQ: How Long Can I Wear the Same Compression?

WARNING!  These compression pants will self destruct in 3-2-1… Hi friends! As I was getting dressed this morning, I heard the dreaded sound of the “warning hole” being torn open in my Bioflect Capris.  Darn it.  And once the Warning Hole has opened up, I’m good for two more washes before, piece by piece, theyContinue reading “Answer to an FAQ: How Long Can I Wear the Same Compression?”

Why I Made a Lipedema Awareness Program for Girl Scouts – Early Treatment is Key

Hi friends, Did you know I have a badge program for lipedema awareness that can be used for Girl Scouts, Scouts, Campfire, etc.?  This is so important, because if girls can figure out what’s going on with them, their future patients or friends early, they can begin conservative measures early.  All this leads to theContinue reading “Why I Made a Lipedema Awareness Program for Girl Scouts – Early Treatment is Key”

I Accidentally Used the Weed Eater on my Own Leg in 1998. And So, a Picture Was Taken

Hi friends! If you’ve followed me for very long, you know that my husband (www.robohara.com) Rob documents Everything, including dumb incidents like the time I accidentally used the Weed Eater on my own leg.  In fairness, I didn’t do it on purpose, but my finger hit the trigger while I was walking to a newContinue reading “I Accidentally Used the Weed Eater on my Own Leg in 1998. And So, a Picture Was Taken”