Goal Setting: Step 1 – Review Your Last Year

What’s your story for 2023?  I haven’t written mine yet, but I’ll share as I think through my review. t’s the time of year when I’m officially Christmased out, and I shift my focus towards setting intentions for the new year. The air is filled with the promise of fresh beginnings. We are ready jumpContinue reading “Goal Setting: Step 1 – Review Your Last Year”

Yay! Today is Glitter for Lipedema Day

Hi friends! Many of us have been gearing up for today (December 18), the first Glitter for Lipedema Day.  This fun event was set up by the admins of the Lipedema Friends International Facebook group. For me, I spent more time thinking of what I would do, and being nervous about it than actually justContinue reading “Yay! Today is Glitter for Lipedema Day”

So, I Wrote a 300 Page Book of Lipedema Lady Art in One Day, and It’s Pretty Great!

Hi friends! To get this party started, if you’d like to see the book and even purchase a coffee table version, here’s the link to the book I’m talking about:  https://amzn.to/3Nrm3yC Now we can start.  I’ve been researching an upcoming set of posts about how society can support women with lipedema.  One of the ideasContinue reading “So, I Wrote a 300 Page Book of Lipedema Lady Art in One Day, and It’s Pretty Great!”

Why Are Awareness Campaigns Important? Awareness is Especially Important for Lipedema!

Hi friends! June is Lipedema Awareness Month, and many of my colleagues in the community are doing all kinds of fun things to spread awareness.  My goal is to spread awareness OUTSIDE of our community in an effort to get to doctors and women who may have the disease but aren’t aware. We see soContinue reading “Why Are Awareness Campaigns Important? Awareness is Especially Important for Lipedema!”

Fresh for Spring! Lipedema Friendly Outfit Idea

HI friends! My mom snapped a pic of me the other day when I took her to a doctor’s appointment, wearing a real dress that I really ordered for myself.  I’ve gotten a ton of compliments on this little outfit so I thought I’d share it.  This is from a company I’ve been wearing aContinue reading “Fresh for Spring! Lipedema Friendly Outfit Idea”

Answer to an FAQ: How Long Can I Wear the Same Compression?

WARNING!  These compression pants will self destruct in 3-2-1… Hi friends! As I was getting dressed this morning, I heard the dreaded sound of the “warning hole” being torn open in my Bioflect Capris.  Darn it.  And once the Warning Hole has opened up, I’m good for two more washes before, piece by piece, theyContinue reading “Answer to an FAQ: How Long Can I Wear the Same Compression?”

Why I Made a Lipedema Awareness Program for Girl Scouts – Early Treatment is Key

Hi friends, Did you know I have a badge program for lipedema awareness that can be used for Girl Scouts, Scouts, Campfire, etc.?  This is so important, because if girls can figure out what’s going on with them, their future patients or friends early, they can begin conservative measures early.  All this leads to theContinue reading “Why I Made a Lipedema Awareness Program for Girl Scouts – Early Treatment is Key”

Lipedema Awareness Month Continues – Participating in a Lipedema Documentary

Hi friends! I’m back from Europe and I have several different posts to share from what’s been going on this June, which is also Lipedema Awareness Month.  Today I’ll be focusing on the whirlwind that has been my last few days. On Monday, I spent the full day travelling home with my Girl Scouts, afterContinue reading “Lipedema Awareness Month Continues – Participating in a Lipedema Documentary”

Last Sunday Lipedema Friendly Outfits – May 2022, a Flowy Skirt Outfit I Copied from a Pharmaceutical Commercial

Hi friends! I’m always looking for outfits that would look good for what I want to do with my legs affected by lipedema.  In general, they need to cover them, or look cute with compression, and I need to be able to find pieces (or similar pieces) online on Amazon so others can copycat rightContinue reading “Last Sunday Lipedema Friendly Outfits – May 2022, a Flowy Skirt Outfit I Copied from a Pharmaceutical Commercial”

Hypermobility and Lipedema go Hand in Hand – It’s Time to Get Serious About Saving Mobility!!

Hi friends! If you’ve followed me much, you know two things about me:  I’ve had several surgeries to treat my stage 3 lipedema (and I’m incredibly grateful), and I swim like a beast for compression in the water and for exercise I can do heavily.   Before my surgeries, my knees gave me problems.  Before IContinue reading “Hypermobility and Lipedema go Hand in Hand – It’s Time to Get Serious About Saving Mobility!!”