Hi friends! I was just thinking about MLD this morning while I was in the bathtub and I began to wonder if I’ve shared info on this for my followers who may be early in the learning process about managing their lipedema. At this point in time, self care is by far the biggestContinue reading “Manual Lymphatic Drainage – Where do YOU MLD?”
Tag Archives: Lipedema
Understanding Lipedema: It’s Not Just Obesity
Hi Friends! Today I want to talk about the difference between obesity and lipedema. I recently was applying for a grant to raise lipedema awareness and was (initially) told that lipedema was covered under funding already set aside for “obesity,” so they wouldn’t grant the…grant. (LOL!) I almost lost my mind a little as IContinue reading “Understanding Lipedema: It’s Not Just Obesity”
LegsLikeMine Lipedema Friendly Shoes – Getting to the FUN Part Now!
Well hi friends! Here’s a little update on the shoe making progress. The LegsLikeMine team has been working for two years now to build up to this point. Some of the big activities we’ve done over these two years: survey lipedema patients on their footwear challenges identify key requirements for our footwear: stability, comfort, support,Continue reading “LegsLikeMine Lipedema Friendly Shoes – Getting to the FUN Part Now!”
Update in my Own Lipedema Journey, Age 51, 3 years post op from 3 surgeries
Hi friends, When I started this site, I promised to share the good, the bad and the ugly because the whole point of it is to help others know what others are going through. So here goes… I turned 51 last month and finally am starting to enjoy some of the gifts of midlife. Continue reading “Update in my Own Lipedema Journey, Age 51, 3 years post op from 3 surgeries”
New Study Highlights the Importance of Exercise in Managing Lipedema
Hi friends! I watch a site called PubMed regularly for any new information coming out about lipedema. I noticed this and thought it was worth sharing. If you’ve followed me long, you know I’m an avid swimmer – it’s incredibly freeing for my body to move how I want while getting exercise. But now I’mContinue reading “New Study Highlights the Importance of Exercise in Managing Lipedema”
Navigating Self-Image with Lipedema: Finding Joy in Photos Despite Challenges
Hi friends! My husband and I recently took an impromptu trip to a local museum he’d never visited and we had such a good time. When we got home, I saw a few pics hubby had taken of our fun day. The first thing I spotted…OMG my ARMS! I think most of us with lipedemaContinue reading “Navigating Self-Image with Lipedema: Finding Joy in Photos Despite Challenges”
The Critical Need for an ICD Code for Lipedema
Hi friends! Lipedema, a chronic and progressive condition affecting mostly women, has long been misunderstood and misdiagnosed. One major reason for this is the lack of a specific International Classification of Diseases (ICD) code. Having a unique ICD code for lipedema is vital for several reasons. First, an ICD code would greatly improve theContinue reading “The Critical Need for an ICD Code for Lipedema”
LipQoL: Your Voice, Your Story – How This New Survey is Empowering Lipedema Warriors
Hey there, Lipedema Warriors! Today, I want to chat with you about something super important – tools like quality of life surveys, and specifically, a new one called the LipQoL Survey that’s designed just for us lipedema patients. It’s the first of its kind just for lipedema, and it’s one you print out and takeContinue reading “LipQoL: Your Voice, Your Story – How This New Survey is Empowering Lipedema Warriors”
Uniting for Change: The Power of the Lipedema Community
Hi friends! Living with lipedema can be a challenging and often isolating experience. Many patients struggle for years to get a proper diagnosis, let alone find effective treatments or insurance coverage. But there’s strength in numbers, and it’s time for the lipedema community to come together and make our voices heard! In recent years, we’veContinue reading “Uniting for Change: The Power of the Lipedema Community”
We’re Having a Heat Wave! Tips for Beating the Heat while Still Using Compression
Whew Ya’ll, it’s HOT! As a fellow lipedema patient, I know firsthand how challenging summer can be when you’re dealing with swelling and the need for compression. The heat can make wearing our essential garments feel like torture, but I’ve learned some tricks from other ladies to stay cool while managing my lipedema symptoms. FirstContinue reading “We’re Having a Heat Wave! Tips for Beating the Heat while Still Using Compression”
