So I’d posted a bit ago sharing the things I was planning to pack and what I thought would happen before surgery. This is a continuation of that post. A couple of days before surgery, I got an email letting me know that several prescriptions were ready for pickup at my pharmacy. Dr. Schwartz hadContinue reading “My Lipedema Surgery Story – The Days Before Until Paul McCartney Knocked Me Out”
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My Story Is Featured in an International Article!
There’s a great story about my journey with lipo-lymphedema at the following link: https://www.physiopod.co.uk/leg-like-mine.shtml Enjoy! Susan
I’m Back from Surgery #1 and I have SO Much to Tell You!
Hi there, I’ve been home from California for a few days now. I’m still recuperating and am off of pain medications completely. The doctor removed 8 Liters of diseased tissue from my calves and I will need at least two more surgeries to get it all. I’ve documented each day before and after surgery andContinue reading “I’m Back from Surgery #1 and I have SO Much to Tell You!”
OK, I Did Buy a Pair of Sensible Shoes (Boots, Actually!) That Don’t Make Me Cry Because They’re So Ugly…
Last week I posted about when I had to make the switch to Sensible Shoes, and I cried really hard when they all came in the mail. Because all of them, I mean ALL of them are just ugly, and orthopedic looking. Like most of them were made to wear with knee high panty hoseContinue reading “OK, I Did Buy a Pair of Sensible Shoes (Boots, Actually!) That Don’t Make Me Cry Because They’re So Ugly…”
Round 1 of Surgery to Remove Lipedema is Drawing Near – I’m So Ready, and a List of Things I Plan to Bring!
I thought I’d provide you all an update on where I am with having surgery. Dr. Schwartz’s office called a couple of weeks ago on a Friday evening to let me know that my single case agreement with Aetna had been approved. All I would need to pay for all the surgeries would be theContinue reading “Round 1 of Surgery to Remove Lipedema is Drawing Near – I’m So Ready, and a List of Things I Plan to Bring!”
Wearing Sensible Shoes is a Must with Lipedema, Even if the Shoes are So Ugly They Make you Cry
Hi Friends! I love to go barefoot and wear cheap flip flops in the summer. About two summers ago, I got a bad case of tendonitis in my left foot and had to get some physical therapy to get me walking enough to go on a trip I’d planned with my Girl Scouts for manyContinue reading “Wearing Sensible Shoes is a Must with Lipedema, Even if the Shoes are So Ugly They Make you Cry”
I’ve Bought Two of These Swing Tops with Lace…so far
I have now bought this in two colors for zoom days to pair with just some compression pants. On ‘fancy’ days, I pair them with a little scarf for fun. I’m 5’9″ and mine hits me mid thigh. Love the booty and top thigh coverage. I get complements on this top every time I wearContinue reading “I’ve Bought Two of These Swing Tops with Lace…so far”
I Found Another Book About Living with Lipedema!
I’m ingesting as much material as I can find about life with lipedema. If I can find one golden nugget to improve my life or someone else’s life, I’m all in! Here’ a book I just stumbled across today and plan to buy right now. I’ll review it probably when I’m in recovery from surgeryContinue reading “I Found Another Book About Living with Lipedema!”
Sharing: My Cover Letter to Aetna Asking for Out of Network Coverage – It’s All True!
In an earlier post, I walked you through the process I used to get insurance precertification and out of network approval in one week flat. This is the cover letter I wrote that went with my request for out of network coverage and a single case agreement. I think it’s a great letter, and IContinue reading “Sharing: My Cover Letter to Aetna Asking for Out of Network Coverage – It’s All True!”
Answers to a Common Question: What Process Did I Use to Get Insurance Coverage for Lipedema?
Greetings and Salutations! We all know that Lipedema is a real disease, and that the World Health Organization (finally) recognized the disease in 2018 with its own codes: (Code EF02.2 in the ICD11). I originally wrote this post at 18 days away from my first surgery (of most likely, many) to get rid of theContinue reading “Answers to a Common Question: What Process Did I Use to Get Insurance Coverage for Lipedema?”
