Hi friends! Living with lipedema can be a challenging and often isolating experience. Many patients struggle for years to get a proper diagnosis, let alone find effective treatments or insurance coverage. But there’s strength in numbers, and it’s time for the lipedema community to come together and make our voices heard! In recent years, we’veContinue reading “Uniting for Change: The Power of the Lipedema Community”
Tag Archives: advocate
Yay! Today is Glitter for Lipedema Day
Hi friends! Many of us have been gearing up for today (December 18), the first Glitter for Lipedema Day. This fun event was set up by the admins of the Lipedema Friends International Facebook group. For me, I spent more time thinking of what I would do, and being nervous about it than actually justContinue reading “Yay! Today is Glitter for Lipedema Day”
Introducing you to Another Champion for Lipedema Awareness – Meet Fat Bottom Amy!
Hi friends! I’ve just spent my morning online visiting with the loveliest lipedema patient named Amy, for her YouTube channel. (Be watching her channel for my interview). You can tell just from looking at her YouTube Shorts alone, that she’s hilarious and has a fresh take on lipedema content. If you’re more the listener type,Continue reading “Introducing you to Another Champion for Lipedema Awareness – Meet Fat Bottom Amy!”
What Kasi Does: Thriving with Lipedema. A Patient Rock Star Story Shared in a Pamphlet to Help YOU!
Hi friends! Take a look at this awesome pamphlet we’ve created for you all about conservative measures just one patient takes daily to manage her lipedema: Thriving with Lipedema_Pamphlet_final_10-20-2023 I feel so very fortunate to have the company and wisdom of Kasi Grosvenor, who is an absolute lipedema patient rock star, as a friend andContinue reading “What Kasi Does: Thriving with Lipedema. A Patient Rock Star Story Shared in a Pamphlet to Help YOU!”
