The Critical Need for an ICD Code for Lipedema

Hi friends! Lipedema, a chronic and progressive condition affecting mostly women, has long been misunderstood and misdiagnosed. One major reason for this is the lack of a specific International Classification of Diseases (ICD) code. Having a unique ICD code for lipedema is vital for several reasons.   First, an ICD code would greatly improve theContinue reading “The Critical Need for an ICD Code for Lipedema”

Uniting for Change: The Power of the Lipedema Community

Hi friends! Living with lipedema can be a challenging and often isolating experience. Many patients struggle for years to get a proper diagnosis, let alone find effective treatments or insurance coverage. But there’s strength in numbers, and it’s time for the lipedema community to come together and make our voices heard! In recent years, we’veContinue reading “Uniting for Change: The Power of the Lipedema Community”

Answers to a Common Question: What Process Did I Use to Get Insurance Coverage for Lipedema?

Greetings and Salutations!  We all know that Lipedema is a real disease, and that the World Health Organization (finally) recognized the disease in 2018 with its own codes:  (Code EF02.2 in the ICD11). I originally wrote this post at 18 days away from my first surgery (of most likely, many) to get rid of theContinue reading “Answers to a Common Question: What Process Did I Use to Get Insurance Coverage for Lipedema?”