Announcing! Girl Scout Badge for Lipedema and Lymphedema Awareness Available Now!

LegsLikeMine has published a badge program for Girl Scout Cadettes, Seniors and Ambassadors to raise awareness of Lipedema and Lymphedema! Girl Scouts is the largest organization for women in the world, with a reach to millions of future medical professionals, scientists, patients and their friends and family.  I hope you enjoy the badge program andContinue reading “Announcing! Girl Scout Badge for Lipedema and Lymphedema Awareness Available Now!”

Sharing: The Diagnosis and Treatment Codes for My Lipedema Reduction Plan

I get asked this question daily:  Can you please share the diagnosis codes and treatment codes for your disease so I can share them with my medical provider?  Why yes, yes I can! Note, I’m not a doctor and this is what was provided to me for my specific case and condition.  It’s what wentContinue reading “Sharing: The Diagnosis and Treatment Codes for My Lipedema Reduction Plan”

My Lipedema Surgery Story – Five Days in a Hotel Alone to Recover

In my previous post, I shared my story about moving from Pearl Recovery Center to the Residence Inn Beverly Hills, where I stayed for five nights before flying home.  This is a continuation from that story. So I got to the Residence Inn on a Friday and stayed there until Wednesday when I returned home. Continue reading “My Lipedema Surgery Story – Five Days in a Hotel Alone to Recover”

You’ve Got to Be Kidding Me! They Make a Surgical Drain Holder and I Didn’t Have to Invent One!

If you follow my YouTube Channel, LegsLikeMine, you’ve probably seen my videos about my love-hate relationships with post-surgical drains.  They’re a mess and hard to keep where you wan them. I invented my own holder out of necessity, which I thought was brilliant: THEN when I got home I see that Amazon has numerous optionsContinue reading “You’ve Got to Be Kidding Me! They Make a Surgical Drain Holder and I Didn’t Have to Invent One!”

We’re Getting a Pool so I Can Exercise at Home When I Want – and my Favorite All-Time Bathing Suit

So we’re getting a pool because I don’t want to wait for stuff to open up any more. I did a little vlog showing you my all time favorite bathing suit. Then I found some similar, cheaper versions on amazon.  Here’s something similar to the Junonia offering on Amazon: , and this one:  And NOTContinue reading “We’re Getting a Pool so I Can Exercise at Home When I Want – and my Favorite All-Time Bathing Suit”

Lipedema is a HOT topic and My Social Media is Out of Control! That’s a GREAT Thing!

I need your help today.  Would you please subscribe to my YouTube channel?  It’s at www.YouTube.com/UCClrV-k0eVqw_0APgEaQklA.  Once I get more subscribers, I can change the URL to something that makes more sense. When I started videoing my surgery journey for lipedema reduction, I seriously had no idea if anyone would even watch the videos.  I’veContinue reading “Lipedema is a HOT topic and My Social Media is Out of Control! That’s a GREAT Thing!”

My Lipedema Surgery Story – When I Woke Up, Two People were Putting Compression on Me in Front of a Mirror

In my previous post, I talked about the days leading up to surgery, pre-op and the morning of surgery.  This is where I’ll pick up. I knew I would be intubated, as the anesthesiologist said it was necessary to keep the airway open while I laid on my stomach for the back of legs toContinue reading “My Lipedema Surgery Story – When I Woke Up, Two People were Putting Compression on Me in Front of a Mirror”

My Lipedema Surgery Story – The Days Before Until Paul McCartney Knocked Me Out

So I’d posted a bit ago sharing the things I was planning to pack and what I thought would happen before surgery.  This is a continuation of that post. A couple of days before surgery, I got an email letting me know that several prescriptions were ready for pickup at my pharmacy. Dr. Schwartz hadContinue reading “My Lipedema Surgery Story – The Days Before Until Paul McCartney Knocked Me Out”

My Story Is Featured in an International Article!

There’s a great story about my journey with lipo-lymphedema at the following link: https://www.physiopod.co.uk/leg-like-mine.shtml Enjoy! Susan

I’m Back from Surgery #1 and I have SO Much to Tell You!

Hi there, I’ve been home from California for a few days now.  I’m still recuperating and am off of pain medications completely.  The doctor removed 8 Liters of diseased tissue from my calves and I will need at least two more surgeries to get it all. I’ve documented each day before and after surgery andContinue reading “I’m Back from Surgery #1 and I have SO Much to Tell You!”