Prepping for Last Sunday Lipedema-Friendly Outfits is SO Much Fun!

Getting ready for my new Last Sunday Lipedema-Friendly outfits series is turning out to be a lot more fun than I’d thought.  First of all, I’m going to go broke if I’m not careful, and second, I’m going to need to clean out my closet soon.  I’ve needed to get rid of tight trousers forContinue reading “Prepping for Last Sunday Lipedema-Friendly Outfits is SO Much Fun!”

What Swimming Has Done for Me Personally

Hi everyone! It’s January here in Oklahoma, USA and our temperatures sway from freezing one day, to days like today when it’s about 60 degrees F after work.  I’ve got our still-new-to-me pool heating up to as close to 80 as I can get it, and in a bit, I’ll jump in and swim –Continue reading “What Swimming Has Done for Me Personally”

Is it Time to Say Goodbye to my Drag Queen Shoes Yet? mmmmm…Maybe

Dear Susan: Wear these. In fact, check Amazon monthly to see if they have other colors. (These are so cute and unique that ladies will literally stop you in public to ask about these fun, supportive, and totally walkable shoes.  Do it, but be sure to take them off when you go through TSA precheckContinue reading “Is it Time to Say Goodbye to my Drag Queen Shoes Yet? mmmmm…Maybe”

Resolutions Schmezolutions (it’s 2022 and I’m not doing it anymore!)

You can tell when a woman has accepted the hand she’s been dealt and is ready to live her best life.  It dawned on me on New Year’s Eve, as we welcomed 2022 in, that this has happened to me.  I’m now invoking Schmezolutions instead of resolutions for this year.  These are things I wasContinue reading “Resolutions Schmezolutions (it’s 2022 and I’m not doing it anymore!)”

2021 was an epic year as a lipedema patient

Happy New Year friends! 2021 was an epic year for a lipedema patient.  I saw so many of us get insurance approval and start surgical treatment, improving and testing ways of eating that work for us, and so many cute clothes came out for us – finally! One of the things I’ve realized is that,Continue reading “2021 was an epic year as a lipedema patient”

June is Lipedema Awareness Month!

It seems like every month is an awareness month for something or another, but Lipedema awareness month is special and different than any other awareness campaign, in my humble opinion, because in our case, awareness can result in real and significant, life-changing action. The reason is our disease goes undiagnosed for years-decades, for some, becauseContinue reading “June is Lipedema Awareness Month!”

My Lipedema Surgery Story – What’s It Like to Stay in a “Recovery Center?”

In some previous posts about my first surgery with Dr. Jaime Schwartz at Total Lipedema Care, I mention that I stayed at Pearl Recovery Retreat in Beverly Hills for two nights, and promised that I’d do a quick review of my stay. Prior to my stay, I’d found Pearl by looking on my doctor’s website. Continue reading “My Lipedema Surgery Story – What’s It Like to Stay in a “Recovery Center?””

My Lipedema Surgery Story – Leakage and Drains – Be Prepared and Graphic Pics

WARNING:  DO NOT SCROLL IF YOU DON’T WANT TO SEE GRAPHIC PICTURES. In earlier posts, I shared with you my experiences of prepping for surgery, my surgery day, and staying in a hotel. I think there’s an area that is rarely discussed, but would be helpful for future surgery patients to know about, and thatContinue reading “My Lipedema Surgery Story – Leakage and Drains – Be Prepared and Graphic Pics”

Sharing: The Diagnosis and Treatment Codes for My Lipedema Reduction Plan

I get asked this question daily:  Can you please share the diagnosis codes and treatment codes for your disease so I can share them with my medical provider?  Why yes, yes I can! Note, I’m not a doctor and this is what was provided to me for my specific case and condition.  It’s what wentContinue reading “Sharing: The Diagnosis and Treatment Codes for My Lipedema Reduction Plan”

My Lipedema Surgery Story – Five Days in a Hotel Alone to Recover

In my previous post, I shared my story about moving from Pearl Recovery Center to the Residence Inn Beverly Hills, where I stayed for five nights before flying home.  This is a continuation from that story. So I got to the Residence Inn on a Friday and stayed there until Wednesday when I returned home. Continue reading “My Lipedema Surgery Story – Five Days in a Hotel Alone to Recover”