June is Lipedema Awareness Month!

It seems like every month is an awareness month for something or another, but Lipedema awareness month is special and different than any other awareness campaign, in my humble opinion, because in our case, awareness can result in real and significant, life-changing action. The reason is our disease goes undiagnosed for years-decades, for some, becauseContinue reading “June is Lipedema Awareness Month!”

My Lipedema Surgery Story – What’s It Like to Stay in a “Recovery Center?”

In some previous posts about my first surgery with Dr. Jaime Schwartz at Total Lipedema Care, I mention that I stayed at Pearl Recovery Retreat in Beverly Hills for two nights, and promised that I’d do a quick review of my stay. Prior to my stay, I’d found Pearl by looking on my doctor’s website. Continue reading “My Lipedema Surgery Story – What’s It Like to Stay in a “Recovery Center?””

My Lipedema Surgery Story – Leakage and Drains – Be Prepared and Graphic Pics

WARNING:  DO NOT SCROLL IF YOU DON’T WANT TO SEE GRAPHIC PICTURES. In earlier posts, I shared with you my experiences of prepping for surgery, my surgery day, and staying in a hotel. I think there’s an area that is rarely discussed, but would be helpful for future surgery patients to know about, and thatContinue reading “My Lipedema Surgery Story – Leakage and Drains – Be Prepared and Graphic Pics”

Sharing: The Diagnosis and Treatment Codes for My Lipedema Reduction Plan

I get asked this question daily:  Can you please share the diagnosis codes and treatment codes for your disease so I can share them with my medical provider?  Why yes, yes I can! Note, I’m not a doctor and this is what was provided to me for my specific case and condition.  It’s what wentContinue reading “Sharing: The Diagnosis and Treatment Codes for My Lipedema Reduction Plan”

My Lipedema Surgery Story – Five Days in a Hotel Alone to Recover

In my previous post, I shared my story about moving from Pearl Recovery Center to the Residence Inn Beverly Hills, where I stayed for five nights before flying home.  This is a continuation from that story. So I got to the Residence Inn on a Friday and stayed there until Wednesday when I returned home. Continue reading “My Lipedema Surgery Story – Five Days in a Hotel Alone to Recover”

You’ve Got to Be Kidding Me! They Make a Surgical Drain Holder and I Didn’t Have to Invent One!

If you follow my YouTube Channel, LegsLikeMine, you’ve probably seen my videos about my love-hate relationships with post-surgical drains.  They’re a mess and hard to keep where you wan them. I invented my own holder out of necessity, which I thought was brilliant: THEN when I got home I see that Amazon has numerous optionsContinue reading “You’ve Got to Be Kidding Me! They Make a Surgical Drain Holder and I Didn’t Have to Invent One!”

We’re Getting a Pool so I Can Exercise at Home When I Want – and my Favorite All-Time Bathing Suit

So we’re getting a pool because I don’t want to wait for stuff to open up any more. I did a little vlog showing you my all time favorite bathing suit. Then I found some similar, cheaper versions on amazon.  Here’s something similar to the Junonia offering on Amazon: , and this one:  And NOTContinue reading “We’re Getting a Pool so I Can Exercise at Home When I Want – and my Favorite All-Time Bathing Suit”

Lipedema is a HOT topic and My Social Media is Out of Control! That’s a GREAT Thing!

I need your help today.  Would you please subscribe to my YouTube channel?  It’s at www.YouTube.com/UCClrV-k0eVqw_0APgEaQklA.  Once I get more subscribers, I can change the URL to something that makes more sense. When I started videoing my surgery journey for lipedema reduction, I seriously had no idea if anyone would even watch the videos.  I’veContinue reading “Lipedema is a HOT topic and My Social Media is Out of Control! That’s a GREAT Thing!”

My Lipedema Surgery Story – When I Woke Up, Two People were Putting Compression on Me in Front of a Mirror

In my previous post, I talked about the days leading up to surgery, pre-op and the morning of surgery.  This is where I’ll pick up. I knew I would be intubated, as the anesthesiologist said it was necessary to keep the airway open while I laid on my stomach for the back of legs toContinue reading “My Lipedema Surgery Story – When I Woke Up, Two People were Putting Compression on Me in Front of a Mirror”

My Lipedema Surgery Story – The Days Before Until Paul McCartney Knocked Me Out

So I’d posted a bit ago sharing the things I was planning to pack and what I thought would happen before surgery.  This is a continuation of that post. A couple of days before surgery, I got an email letting me know that several prescriptions were ready for pickup at my pharmacy. Dr. Schwartz hadContinue reading “My Lipedema Surgery Story – The Days Before Until Paul McCartney Knocked Me Out”