My Story Is Featured in an International Article!

There’s a great story about my journey with lipo-lymphedema at the following link: https://www.physiopod.co.uk/leg-like-mine.shtml Enjoy! Susan

I’m Back from Surgery #1 and I have SO Much to Tell You!

Hi there, I’ve been home from California for a few days now.  I’m still recuperating and am off of pain medications completely.  The doctor removed 8 Liters of diseased tissue from my calves and I will need at least two more surgeries to get it all. I’ve documented each day before and after surgery andContinue reading “I’m Back from Surgery #1 and I have SO Much to Tell You!”

OK, I Did Buy a Pair of Sensible Shoes (Boots, Actually!) That Don’t Make Me Cry Because They’re So Ugly…

Last week I posted about when I had to make the switch to Sensible Shoes, and I cried really hard when they all came in the mail.  Because all of them, I mean ALL of them are just ugly, and orthopedic looking.  Like most of them were made to wear with knee high panty hoseContinue reading “OK, I Did Buy a Pair of Sensible Shoes (Boots, Actually!) That Don’t Make Me Cry Because They’re So Ugly…”

Round 1 of Surgery to Remove Lipedema is Drawing Near – I’m So Ready, and a List of Things I Plan to Bring!

I thought I’d provide you all an update on where I am with having surgery.  Dr. Schwartz’s office called a couple of weeks ago on a Friday evening to let me know that my single case agreement with Aetna had been approved.  All I would need to pay for all the surgeries would be theContinue reading “Round 1 of Surgery to Remove Lipedema is Drawing Near – I’m So Ready, and a List of Things I Plan to Bring!”

Wearing Sensible Shoes is a Must with Lipedema, Even if the Shoes are So Ugly They Make you Cry

Hi Friends! I love to go barefoot and wear cheap flip flops in the summer.  About two summers ago, I got a bad case of tendonitis in my left foot and had to get some physical therapy to get me walking enough to go on a trip I’d planned with my Girl Scouts for manyContinue reading “Wearing Sensible Shoes is a Must with Lipedema, Even if the Shoes are So Ugly They Make you Cry”

I’ve Bought Two of These Swing Tops with Lace…so far

I have now bought this in two colors for zoom days to pair with just some compression pants. On ‘fancy’ days, I pair them with a little scarf for fun. I’m 5’9″ and mine hits me mid thigh. Love the booty and top thigh coverage.  I get complements on this top every time I wearContinue reading “I’ve Bought Two of These Swing Tops with Lace…so far”

I Found Another Book About Living with Lipedema!

I’m ingesting as much material as I can find about life with lipedema.  If I can find one golden nugget to improve my life or someone else’s life, I’m all in!  Here’ a book I just stumbled across today and plan to buy right now.  I’ll review it probably when I’m in recovery from surgeryContinue reading “I Found Another Book About Living with Lipedema!”

Sharing: My Cover Letter to Aetna Asking for Out of Network Coverage – It’s All True!

In an earlier post, I walked you through the process I used to get insurance precertification and out of network approval in one week flat.  This is the cover letter I wrote that went with my request for out of network coverage and a single case agreement.  I think it’s a great letter, and IContinue reading “Sharing: My Cover Letter to Aetna Asking for Out of Network Coverage – It’s All True!”

Answers to a Common Question: What Process Did I Use to Get Insurance Coverage for Lipedema?

Greetings and Salutations!  We all know that Lipedema is a real disease, and that the World Health Organization (finally) recognized the disease in 2018 with its own codes:  (Code EF02.2 in the ICD11). I originally wrote this post at 18 days away from my first surgery (of most likely, many) to get rid of theContinue reading “Answers to a Common Question: What Process Did I Use to Get Insurance Coverage for Lipedema?”

I’ve owned My BioFlect Leggings for One Hour, and I’m in Love.

I remember going to see the Nutcracker as a kid and having to dress up.  My mom bought me some control top panty hose to wear with a dress to the event.  Not even halfway through the play, my hose rolled down and stopped halfway across my bum.  I sat through the rest of theContinue reading “I’ve owned My BioFlect Leggings for One Hour, and I’m in Love.”