There’s a great story about my journey with lipo-lymphedema at the following link: https://www.physiopod.co.uk/leg-like-mine.shtml Enjoy! Susan
My Story Is Featured in an International Article!
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There’s a great story about my journey with lipo-lymphedema at the following link: https://www.physiopod.co.uk/leg-like-mine.shtml Enjoy! Susan
Hi there, I’ve been home from California for a few days now. I’m still recuperating and am off of pain medications completely. The doctor removed 8 Liters of diseased tissue from my calves and I will need at least two more surgeries to get it all. I’ve documented each day before and after surgery andContinue reading “I’m Back from Surgery #1 and I have SO Much to Tell You!”
Last week I posted about when I had to make the switch to Sensible Shoes, and I cried really hard when they all came in the mail. Because all of them, I mean ALL of them are just ugly, and orthopedic looking. Like most of them were made to wear with knee high panty hoseContinue reading “OK, I Did Buy a Pair of Sensible Shoes (Boots, Actually!) That Don’t Make Me Cry Because They’re So Ugly…”
I thought I’d provide you all an update on where I am with having surgery. Dr. Schwartz’s office called a couple of weeks ago on a Friday evening to let me know that my single case agreement with Aetna had been approved. All I would need to pay for all the surgeries would be theContinue reading “Round 1 of Surgery to Remove Lipedema is Drawing Near – I’m So Ready, and a List of Things I Plan to Bring!”
Hi Friends! I love to go barefoot and wear cheap flip flops in the summer. About two summers ago, I got a bad case of tendonitis in my left foot and had to get some physical therapy to get me walking enough to go on a trip I’d planned with my Girl Scouts for manyContinue reading “Wearing Sensible Shoes is a Must with Lipedema, Even if the Shoes are So Ugly They Make you Cry”
I have now bought this in two colors for zoom days to pair with just some compression pants. On ‘fancy’ days, I pair them with a little scarf for fun. I’m 5’9″ and mine hits me mid thigh. Love the booty and top thigh coverage. I get complements on this top every time I wearContinue reading “I’ve Bought Two of These Swing Tops with Lace…so far”
I’m ingesting as much material as I can find about life with lipedema. If I can find one golden nugget to improve my life or someone else’s life, I’m all in! Here’ a book I just stumbled across today and plan to buy right now. I’ll review it probably when I’m in recovery from surgeryContinue reading “I Found Another Book About Living with Lipedema!”
In an earlier post, I walked you through the process I used to get insurance precertification and out of network approval in one week flat. This is the cover letter I wrote that went with my request for out of network coverage and a single case agreement. I think it’s a great letter, and IContinue reading “Sharing: My Cover Letter to Aetna Asking for Out of Network Coverage – It’s All True!”
Greetings and Salutations! We all know that Lipedema is a real disease, and that the World Health Organization (finally) recognized the disease in 2018 with its own codes: (Code EF02.2 in the ICD11). I originally wrote this post at 18 days away from my first surgery (of most likely, many) to get rid of theContinue reading “Answers to a Common Question: What Process Did I Use to Get Insurance Coverage for Lipedema?”
I remember going to see the Nutcracker as a kid and having to dress up. My mom bought me some control top panty hose to wear with a dress to the event. Not even halfway through the play, my hose rolled down and stopped halfway across my bum. I sat through the rest of theContinue reading “I’ve owned My BioFlect Leggings for One Hour, and I’m in Love.”