Hi Friends! Today I want to talk about the difference between obesity and lipedema. I recently was applying for a grant to raise lipedema awareness and was (initially) told that lipedema was covered under funding already set aside for “obesity,” so they wouldn’t grant the…grant. (LOL!) I almost lost my mind a little as IContinue reading “Understanding Lipedema: It’s Not Just Obesity”
Tag Archives: lipedema foundation
June 11 is World Lipedema Day – Share Your Story. Amplify our Voices
Hi Friends! Today is World Lipedema Day. Share your story. Why We Need to Fight for Lipedema Awareness June 11th marks World Lipedema Day, a crucial reminder of the invisible struggle faced by countless individuals worldwide, predominantly women, living with this chronic and debilitating condition. Lipedema, a disorder of the connective tissue, is often misunderstood,Continue reading “June 11 is World Lipedema Day – Share Your Story. Amplify our Voices”
Speaking the Same Language: Comparing, “Pears to Pears” in Lipedema Diagnosis and Research
Hi friends! More work is happening to get to a full research environment to find proper treatments and lead to a cure for lipedema. I’m going to share with you two documents that are super important, and emphasize that the two organizations that wrote these documents are naturally complementing each other’s work with the publicationContinue reading “Speaking the Same Language: Comparing, “Pears to Pears” in Lipedema Diagnosis and Research”
The First Lipedema Biorepository is in Place – This is a Tremendous Advance in Research
Hi friends! I thought I’d share a little good news I came across today. On January 4, The Lipedema Foundation announced its partnership with Vanderbilt University to advance lipedema research. Together, they have set up a biorepository for lipedema biological samples at Vanderbilt University Medical Center so that researchers can have a library of samplesContinue reading “The First Lipedema Biorepository is in Place – This is a Tremendous Advance in Research”
Interesting Find: Data on How Many Books and Products are on Amazon with the Words Lipedema or Lipoedema vs. some Men’s Conditions
Hi friends, Is anybody out there a little geeky like me and you go down random data rabbit holes sometimes? I’m doing some research today to see how much lipedema in the media has changed since I first wrote Jeans on a Beach Day. At the time I published it, in April 2022, I onlyContinue reading “Interesting Find: Data on How Many Books and Products are on Amazon with the Words Lipedema or Lipoedema vs. some Men’s Conditions”
Lipedema in the News: A Story from Los Angeles that Went to 854,000 YouTube Subscribers
Hi friends, I’m sharing a news story that I stumbled across from YouTube, originally published a few years back from Fox News. The more we have lipedema in the news, the more folks can be exposed, the more possibly get that proper diagnosis early along with treatment to save mobility and prevent progression and allContinue reading “Lipedema in the News: A Story from Los Angeles that Went to 854,000 YouTube Subscribers”
What Kasi Does: Thriving with Lipedema. A Patient Rock Star Story Shared in a Pamphlet to Help YOU!
Hi friends! Take a look at this awesome pamphlet we’ve created for you all about conservative measures just one patient takes daily to manage her lipedema: Thriving with Lipedema_Pamphlet_final_10-20-2023 I feel so very fortunate to have the company and wisdom of Kasi Grosvenor, who is an absolute lipedema patient rock star, as a friend andContinue reading “What Kasi Does: Thriving with Lipedema. A Patient Rock Star Story Shared in a Pamphlet to Help YOU!”
