Hi friends, As I prepare for Lipedema Awareness Month, I’ve been reviewing a document called the First Look Report from the Lipedema Foundation. These are findings that the LF discovered as they analyzed the Lipedema Registry Survey. The finding that continues to blow my mind is that women go on average 17 years with symptomsContinue reading “The 17-Year Delay: Shedding Light on the Diagnostic Odyssey of Lipedema Patients”
Tag Archives: lipedemafighter
An Open Letter to All Medical School Deans and Curriculum Committees: Teach Lipedema
Dear Esteemed Deans, As leaders in shaping the future of healthcare, you hold the power to transform the lives of millions of women worldwide who are silently suffering from a condition that has long been overlooked and misunderstood – lipedema. Lipedema, a chronic disorder characterized by the abnormal accumulation of fat in the legs andContinue reading “An Open Letter to All Medical School Deans and Curriculum Committees: Teach Lipedema”
Dismissing Known Lipedema Symptoms as Obesity Violates the Hippocratic Oath
Hi friends, this post is intended to share with physicians and healthcare providers, whom you’ve worked with to get a lipedema diagnosis, and have been ignored or gaslighted, despite providing resources such as the Clinician’s Guide to Lipedema from the Lipedema Foundation. Best of luck to you! Remember if you aren’t being listened to especiallyContinue reading “Dismissing Known Lipedema Symptoms as Obesity Violates the Hippocratic Oath”
The Power of Advocacy: Uplifting the Lipedema Community
Hi friends! As you can tell, I’m gearing up for Lipedema Awareness Month, and I encourage you…ask you, to participate using your skills, interests, and reach. As someone living with lipedema, I know firsthand the challenges this chronic condition can bring. The physical and emotional impacts can be overwhelming, but there is strength in numbers.Continue reading “The Power of Advocacy: Uplifting the Lipedema Community”
If You Have “Hard” Areas in your Lipedema Tissue, it could be Fibrosis – Ways to, At Least, Fight the Battle
Hi friends! Let’s talk about fibrosis. We don’t talk about it enough and its a pretty big, actually MAJOR issue for women with lipedema. This is an area where I’m still learning so I highly advise consulting your certified lymphedema therapist or PT for assistance. And if you look at my picture below, you’ll seeContinue reading “If You Have “Hard” Areas in your Lipedema Tissue, it could be Fibrosis – Ways to, At Least, Fight the Battle”
Answer to an FAQ: How Long Can I Wear the Same Compression?
WARNING! These compression pants will self destruct in 3-2-1… Hi friends! As I was getting dressed this morning, I heard the dreaded sound of the “warning hole” being torn open in my Bioflect Capris. Darn it. And once the Warning Hole has opened up, I’m good for two more washes before, piece by piece, theyContinue reading “Answer to an FAQ: How Long Can I Wear the Same Compression?”
Why I Made a Lipedema Awareness Program for Girl Scouts – Early Treatment is Key
Hi friends, Did you know I have a badge program for lipedema awareness that can be used for Girl Scouts, Scouts, Campfire, etc.? This is so important, because if girls can figure out what’s going on with them, their future patients or friends early, they can begin conservative measures early. All this leads to theContinue reading “Why I Made a Lipedema Awareness Program for Girl Scouts – Early Treatment is Key”
