Hi friends, As I prepare for Lipedema Awareness Month, I’ve been reviewing a document called the First Look Report from the Lipedema Foundation. These are findings that the LF discovered as they analyzed the Lipedema Registry Survey. The finding that continues to blow my mind is that women go on average 17 years with symptomsContinue reading “The 17-Year Delay: Shedding Light on the Diagnostic Odyssey of Lipedema Patients”
Tag Archives: thickthighs
An Open Letter to All Medical School Deans and Curriculum Committees: Teach Lipedema
Dear Esteemed Deans, As leaders in shaping the future of healthcare, you hold the power to transform the lives of millions of women worldwide who are silently suffering from a condition that has long been overlooked and misunderstood – lipedema. Lipedema, a chronic disorder characterized by the abnormal accumulation of fat in the legs andContinue reading “An Open Letter to All Medical School Deans and Curriculum Committees: Teach Lipedema”
Dismissing Known Lipedema Symptoms as Obesity Violates the Hippocratic Oath
Hi friends, this post is intended to share with physicians and healthcare providers, whom you’ve worked with to get a lipedema diagnosis, and have been ignored or gaslighted, despite providing resources such as the Clinician’s Guide to Lipedema from the Lipedema Foundation. Best of luck to you! Remember if you aren’t being listened to especiallyContinue reading “Dismissing Known Lipedema Symptoms as Obesity Violates the Hippocratic Oath”
The Power of Advocacy: Uplifting the Lipedema Community
Hi friends! As you can tell, I’m gearing up for Lipedema Awareness Month, and I encourage you…ask you, to participate using your skills, interests, and reach. As someone living with lipedema, I know firsthand the challenges this chronic condition can bring. The physical and emotional impacts can be overwhelming, but there is strength in numbers.Continue reading “The Power of Advocacy: Uplifting the Lipedema Community”
Why Are Awareness Campaigns Important? Awareness is Especially Important for Lipedema!
Hi friends! June is Lipedema Awareness Month, and many of my colleagues in the community are doing all kinds of fun things to spread awareness. My goal is to spread awareness OUTSIDE of our community in an effort to get to doctors and women who may have the disease but aren’t aware. We see soContinue reading “Why Are Awareness Campaigns Important? Awareness is Especially Important for Lipedema!”
Answer to an FAQ: How Long Can I Wear the Same Compression?
WARNING! These compression pants will self destruct in 3-2-1… Hi friends! As I was getting dressed this morning, I heard the dreaded sound of the “warning hole” being torn open in my Bioflect Capris. Darn it. And once the Warning Hole has opened up, I’m good for two more washes before, piece by piece, theyContinue reading “Answer to an FAQ: How Long Can I Wear the Same Compression?”
People are Funny. I’m Funny. I Show My Legs More than Ever Now that I Know I Have Lipedema. How about You?
Hi friends, I just had this odd little Friday thought. Over the years as my condition progressed and I could not figure out what was wrong, I began hiding my legs more and more. When I (through a very long process) determined I had lipedema and now I feel freer to show my legs moreContinue reading “People are Funny. I’m Funny. I Show My Legs More than Ever Now that I Know I Have Lipedema. How about You?”
