Hi friends, As I prepare for Lipedema Awareness Month, I’ve been reviewing a document called the First Look Report from the Lipedema Foundation. These are findings that the LF discovered as they analyzed the Lipedema Registry Survey. The finding that continues to blow my mind is that women go on average 17 years with symptomsContinue reading “The 17-Year Delay: Shedding Light on the Diagnostic Odyssey of Lipedema Patients”
Tag Archives: columnlegs
An Open Letter to All Medical School Deans and Curriculum Committees: Teach Lipedema
Dear Esteemed Deans, As leaders in shaping the future of healthcare, you hold the power to transform the lives of millions of women worldwide who are silently suffering from a condition that has long been overlooked and misunderstood – lipedema. Lipedema, a chronic disorder characterized by the abnormal accumulation of fat in the legs andContinue reading “An Open Letter to All Medical School Deans and Curriculum Committees: Teach Lipedema”
Dismissing Known Lipedema Symptoms as Obesity Violates the Hippocratic Oath
Hi friends, this post is intended to share with physicians and healthcare providers, whom you’ve worked with to get a lipedema diagnosis, and have been ignored or gaslighted, despite providing resources such as the Clinician’s Guide to Lipedema from the Lipedema Foundation. Best of luck to you! Remember if you aren’t being listened to especiallyContinue reading “Dismissing Known Lipedema Symptoms as Obesity Violates the Hippocratic Oath”
The Power of Advocacy: Uplifting the Lipedema Community
Hi friends! As you can tell, I’m gearing up for Lipedema Awareness Month, and I encourage you…ask you, to participate using your skills, interests, and reach. As someone living with lipedema, I know firsthand the challenges this chronic condition can bring. The physical and emotional impacts can be overwhelming, but there is strength in numbers.Continue reading “The Power of Advocacy: Uplifting the Lipedema Community”
The 2023 Fat Disorders Resource Society Conference Did Not Disappoint – A Recap
Hi Friends! I’ve just returned from my second FDRS conference. This one was in Atlanta and had numerous patients, therapists, surgeons, clinicians and vendors in attendance. It’s a great event to learn about all the new research initiatives and outcomes related to fat disorders, of which lipedema is the largest group represented at the conference.Continue reading “The 2023 Fat Disorders Resource Society Conference Did Not Disappoint – A Recap”
Fresh for Spring! Lipedema Friendly Outfit Idea
HI friends! My mom snapped a pic of me the other day when I took her to a doctor’s appointment, wearing a real dress that I really ordered for myself. I’ve gotten a ton of compliments on this little outfit so I thought I’d share it. This is from a company I’ve been wearing aContinue reading “Fresh for Spring! Lipedema Friendly Outfit Idea”
I finally reviewed the Hip Hugger for the booty gap in all our jeans
Hi friends! A long time ago, in a galaxy far, far away, I bought a Hip Hugger device to test. This device is advertised as, ‘The no-buckle, no-bulk, no-front belt.” The packaging also says, “Bye bye peek-a-booty!” Cute. So I did a little test of this guy. Here’s my review. It was really hard toContinue reading “I finally reviewed the Hip Hugger for the booty gap in all our jeans”
People are Funny. I’m Funny. I Show My Legs More than Ever Now that I Know I Have Lipedema. How about You?
Hi friends, I just had this odd little Friday thought. Over the years as my condition progressed and I could not figure out what was wrong, I began hiding my legs more and more. When I (through a very long process) determined I had lipedema and now I feel freer to show my legs moreContinue reading “People are Funny. I’m Funny. I Show My Legs More than Ever Now that I Know I Have Lipedema. How about You?”
A Magazine Article about LegsLikeMine Footwear Tells My Story of Why I’m Doing This for Us
Hi friends! Take a look at this article in the Physiopod Magazine from February 2023. Here, I tell all of my story about why I decided to pursue making footwear for us with lipedema. It’s a five minute read that will give you a few relatable chuckles, I’m sure. Lipoedema Ladies in the UK NeededContinue reading “A Magazine Article about LegsLikeMine Footwear Tells My Story of Why I’m Doing This for Us”
