Whew Ya’ll, it’s HOT! As a fellow lipedema patient, I know firsthand how challenging summer can be when you’re dealing with swelling and the need for compression. The heat can make wearing our essential garments feel like torture, but I’ve learned some tricks from other ladies to stay cool while managing my lipedema symptoms. FirstContinue reading “We’re Having a Heat Wave! Tips for Beating the Heat while Still Using Compression”
Tag Archives: lipedema awareness
Sunday Thoughts. Finding Gratitude in Lipedema: The Strength of the Community
Hi friends! As I continue to prepare for Lipedema Awareness month, I’m really excited to see what the other ladies in the Lipedema Community have up their sleeves to spread awareness. And I can’t help but feel a profound sense of appreciation for the incredible individuals I’ve had the privilege of meeting because of lipedema.Continue reading “Sunday Thoughts. Finding Gratitude in Lipedema: The Strength of the Community”
Lipedema in the News: 41 year old dancer with lipedema on TODAY
Hi friends, The Today show is doing a great job of raising lipedema awareness with their story about a 41-year-old dancer with lipedema. Check it out! Dancer Details Living With Lipedema, Having Surgery To Treat It (today.com). In my upcoming book, Empowered Legs: A Guide to Lipedema Advocacy and Awareness, I discuss ways EVERYONE canContinue reading “Lipedema in the News: 41 year old dancer with lipedema on TODAY”
First Photo Shoot of LegsLikeMine Lipedema-Friendly Footwear, and Update
Hi friends! It’s about time! Here’s an update on the footwear we’ve made for us. Check it out! I have the second of three loafer prototypes for footwear designed specifically for ladies with lipedema. These shoes are designed for swelling and feet that are double depth or Full Volume. They’re stable, supportive, and adaptive, andContinue reading “First Photo Shoot of LegsLikeMine Lipedema-Friendly Footwear, and Update”
Mental Health and Lipedema: Grief over Loss of Health and Body Image Changes
Hi friends, Right now, the research on the physical aspects of having lipedema is exploding. I feel there is still a pretty big gap in supporting patients’ mental health, however. In an earlier post about Body Grief, I gave some feelings you as a lipedema patient might be experiencing and some strategies to cope withContinue reading “Mental Health and Lipedema: Grief over Loss of Health and Body Image Changes”
Answer to an FAQ: Should I Wear my Compression All Day and All Night? A Vulnerable Op Ed
Hi friends! Let me start off by saying this is a conversation for your doctor, but here’s my opinion based on personal experience and research that I’ve been doing. There is a lot of research on several conditions showing that wearing compression garments can be beneficial for not only lipedema, but other conditions. I loveContinue reading “Answer to an FAQ: Should I Wear my Compression All Day and All Night? A Vulnerable Op Ed”
Let’s Talk about Fatigue, a REAL Symptom of Lipedema, and What You Can Do About it Today
Hi Friends, Like many of you, I experience fatigue as one of the most prevalent symptoms that go along with lipedema. It’s overwhelming sometimes, and I find myself napping more frequently than I’d like to be as effective as I want. How to combat fatigue with lipedema isn’t often discussed other than the suggestion that,Continue reading “Let’s Talk about Fatigue, a REAL Symptom of Lipedema, and What You Can Do About it Today”
My Visit to JunoActive, my Favorite Plus Size Swimsuit (and clothing) Manufacturer
Hi Friends! I’m home from the coolest opportunity. I was able to drive up to Burnsville, MN to visit JunoActive. This is the company that makes the swimwear I frequently feature on my site, and exclusively featured in the more than 100 photos in my latest book, Aqua Therapy for Lipedema and Lymphedema (I evenContinue reading “My Visit to JunoActive, my Favorite Plus Size Swimsuit (and clothing) Manufacturer”
I’m Participating in my First-Ever Triathlon on June 24 for Lipedema Awareness, From a Cruise Ship!
Hi everyone! I’m doing a triathlon from a cruise ship on June 24. The Lipedema Triathlon. June is lipedema awareness month and I’m making plans now for something I can do every day to share awareness about it. Why? To help other women who have it but don’t know about lipedema, so they can feelContinue reading “I’m Participating in my First-Ever Triathlon on June 24 for Lipedema Awareness, From a Cruise Ship!”
The 2023 Fat Disorders Resource Society Conference Did Not Disappoint – A Recap
Hi Friends! I’ve just returned from my second FDRS conference. This one was in Atlanta and had numerous patients, therapists, surgeons, clinicians and vendors in attendance. It’s a great event to learn about all the new research initiatives and outcomes related to fat disorders, of which lipedema is the largest group represented at the conference.Continue reading “The 2023 Fat Disorders Resource Society Conference Did Not Disappoint – A Recap”
