Hey there, lovely ladies! If you’ve recently been diagnosed with lipedema, those first few days and weeks can feel like a whirlwind of emotions. Trust me, I’ve been there myself and the shock and sadness can be overwhelming at times. The Long Road to Answers For so many of us, getting that lipedemaContinue reading “When Lipedema Leaves You Feeling Lost”
Tag Archives: Lipedema
Lipedema Starts Young: 57% First Notice Symptoms as Teens
Hi friends! Have you ever heard of lipedema? If not, you’re not alone. This chronic condition, primarily affecting women, is often misunderstood and underdiagnosed. But the statistics are staggering – according to the Lipedema Foundation Registry Report, a groundbreaking survey of over 500 individuals with lipedema, a whopping 57% reported experiencing their first symptoms betweenContinue reading “Lipedema Starts Young: 57% First Notice Symptoms as Teens”
June 11 is World Lipedema Day – Share Your Story. Amplify our Voices
Hi Friends! Today is World Lipedema Day. Share your story. Why We Need to Fight for Lipedema Awareness June 11th marks World Lipedema Day, a crucial reminder of the invisible struggle faced by countless individuals worldwide, predominantly women, living with this chronic and debilitating condition. Lipedema, a disorder of the connective tissue, is often misunderstood,Continue reading “June 11 is World Lipedema Day – Share Your Story. Amplify our Voices”
Understanding Lipedema, Lymphedema, and Dercum’s Disease
Hi friends, I’ve noticed that a lot of people get these three diseases confused because they are so interrelated. I thought I’d do a post talking about their similarities and differences that we can refer to when FAQs come up. Take me, for example. I have stage III lipedema, which also involves lymphedema having developed. Continue reading “Understanding Lipedema, Lymphedema, and Dercum’s Disease”
Speaking the Same Language: Comparing, “Pears to Pears” in Lipedema Diagnosis and Research
Hi friends! More work is happening to get to a full research environment to find proper treatments and lead to a cure for lipedema. I’m going to share with you two documents that are super important, and emphasize that the two organizations that wrote these documents are naturally complementing each other’s work with the publicationContinue reading “Speaking the Same Language: Comparing, “Pears to Pears” in Lipedema Diagnosis and Research”
I Validate Your Pain: It’s One of the Biggest Symptoms of Lipedema
Hi friends! Today, I want to address a topic that is often overlooked or misunderstood, can’t be seen and maybe…(?) isn’t always believed. PAIN – the physical pain experienced by those living with lipedema. This chronic condition, characterized by the disproportionate accumulation of fat in the legs and sometimes arms, is WAY more than justContinue reading “I Validate Your Pain: It’s One of the Biggest Symptoms of Lipedema”
Overdue Progress: Elevating Investment in Women’s Health
Hi friends! Have you ever heard of lipedema? It’s a chronic condition that causes an abnormal buildup of fat cells in the legs and arms, leading to pain, immobility, and a higher risk of lymphedema. Sounds serious, right? Yet, millions of women struggle for years (the average is 17 years from symptoms starting to diagnosis)Continue reading “Overdue Progress: Elevating Investment in Women’s Health”
The 17-Year Delay: Shedding Light on the Diagnostic Odyssey of Lipedema Patients
Hi friends, As I prepare for Lipedema Awareness Month, I’ve been reviewing a document called the First Look Report from the Lipedema Foundation. These are findings that the LF discovered as they analyzed the Lipedema Registry Survey. The finding that continues to blow my mind is that women go on average 17 years with symptomsContinue reading “The 17-Year Delay: Shedding Light on the Diagnostic Odyssey of Lipedema Patients”
An Open Letter to All Medical School Deans and Curriculum Committees: Teach Lipedema
Dear Esteemed Deans, As leaders in shaping the future of healthcare, you hold the power to transform the lives of millions of women worldwide who are silently suffering from a condition that has long been overlooked and misunderstood – lipedema. Lipedema, a chronic disorder characterized by the abnormal accumulation of fat in the legs andContinue reading “An Open Letter to All Medical School Deans and Curriculum Committees: Teach Lipedema”
Staying Stable: Strategies for Hypermobile Knee Health (Hypermobility is often seen with lipedema.)
Hi friends! Many women with lipedema also have joint hypermobility, and I am one of them. In fact, my knee hypermobility worsened after undergoing lipedema surgery to remove significant fat pads from the inside of my knees. As someone living with Ehlers-Danlos syndrome (EDS) and hypermobile joints, taking care of my knees has become aContinue reading “Staying Stable: Strategies for Hypermobile Knee Health (Hypermobility is often seen with lipedema.)”
