Hi friends! I watch a site called PubMed regularly for any new information coming out about lipedema. I noticed this and thought it was worth sharing. If you’ve followed me long, you know I’m an avid swimmer – it’s incredibly freeing for my body to move how I want while getting exercise. But now I’mContinue reading “New Study Highlights the Importance of Exercise in Managing Lipedema”
Tag Archives: research
Uniting for Change: The Power of the Lipedema Community
Hi friends! Living with lipedema can be a challenging and often isolating experience. Many patients struggle for years to get a proper diagnosis, let alone find effective treatments or insurance coverage. But there’s strength in numbers, and it’s time for the lipedema community to come together and make our voices heard! In recent years, we’veContinue reading “Uniting for Change: The Power of the Lipedema Community”
Speaking the Same Language: Comparing, “Pears to Pears” in Lipedema Diagnosis and Research
Hi friends! More work is happening to get to a full research environment to find proper treatments and lead to a cure for lipedema. I’m going to share with you two documents that are super important, and emphasize that the two organizations that wrote these documents are naturally complementing each other’s work with the publicationContinue reading “Speaking the Same Language: Comparing, “Pears to Pears” in Lipedema Diagnosis and Research”
Overdue Progress: Elevating Investment in Women’s Health
Hi friends! Have you ever heard of lipedema? It’s a chronic condition that causes an abnormal buildup of fat cells in the legs and arms, leading to pain, immobility, and a higher risk of lymphedema. Sounds serious, right? Yet, millions of women struggle for years (the average is 17 years from symptoms starting to diagnosis)Continue reading “Overdue Progress: Elevating Investment in Women’s Health”
The First Lipedema Biorepository is in Place – This is a Tremendous Advance in Research
Hi friends! I thought I’d share a little good news I came across today. On January 4, The Lipedema Foundation announced its partnership with Vanderbilt University to advance lipedema research. Together, they have set up a biorepository for lipedema biological samples at Vanderbilt University Medical Center so that researchers can have a library of samplesContinue reading “The First Lipedema Biorepository is in Place – This is a Tremendous Advance in Research”
Yay! Today is Glitter for Lipedema Day
Hi friends! Many of us have been gearing up for today (December 18), the first Glitter for Lipedema Day. This fun event was set up by the admins of the Lipedema Friends International Facebook group. For me, I spent more time thinking of what I would do, and being nervous about it than actually justContinue reading “Yay! Today is Glitter for Lipedema Day”
Interesting Find: Data on How Many Books and Products are on Amazon with the Words Lipedema or Lipoedema vs. some Men’s Conditions
Hi friends, Is anybody out there a little geeky like me and you go down random data rabbit holes sometimes? I’m doing some research today to see how much lipedema in the media has changed since I first wrote Jeans on a Beach Day. At the time I published it, in April 2022, I onlyContinue reading “Interesting Find: Data on How Many Books and Products are on Amazon with the Words Lipedema or Lipoedema vs. some Men’s Conditions”
Answer to an FAQ – Do Injectable Weight Loss Drugs (GLP-1 Agonists) Help with Lipedema
Hi friends! One of the most specific reasons I travelled to Potsdam, Germany was to hear a presentation called, The Role of GLP-1 Receptor Agonists in the Conservative Management of Lipedema by Aria Vazirnia (Beverly Hills, USA). Dr. Vazirnia is a dermatologist who did a study in conjunction with the very famous lipedema Dr. DavidContinue reading “Answer to an FAQ – Do Injectable Weight Loss Drugs (GLP-1 Agonists) Help with Lipedema”
The 2023 Fat Disorders Resource Society Conference Did Not Disappoint – A Recap
Hi Friends! I’ve just returned from my second FDRS conference. This one was in Atlanta and had numerous patients, therapists, surgeons, clinicians and vendors in attendance. It’s a great event to learn about all the new research initiatives and outcomes related to fat disorders, of which lipedema is the largest group represented at the conference.Continue reading “The 2023 Fat Disorders Resource Society Conference Did Not Disappoint – A Recap”
There are Specialists Learning and Teaching about Diets to Help us with Lipedema
This morning I am reviewing a video called, “Eating to Starve #Lymphedema & #Lipedema“ by Chuck Ehrlich, MS, MBA via YouTube, as I prepare for the new year. The recommendations that he makes align with the outcomes of a food sensitivity test I did through checkmybodyhealth.com last month as well. Looks like for me, I need toContinue reading “There are Specialists Learning and Teaching about Diets to Help us with Lipedema”
