Hi friends, I’m sharing a news story that I stumbled across from YouTube, originally published a few years back from Fox News. The more we have lipedema in the news, the more folks can be exposed, the more possibly get that proper diagnosis early along with treatment to save mobility and prevent progression and allContinue reading “Lipedema in the News: A Story from Los Angeles that Went to 854,000 YouTube Subscribers”
Tag Archives: Biglegs
Why Are Awareness Campaigns Important? Awareness is Especially Important for Lipedema!
Hi friends! June is Lipedema Awareness Month, and many of my colleagues in the community are doing all kinds of fun things to spread awareness. My goal is to spread awareness OUTSIDE of our community in an effort to get to doctors and women who may have the disease but aren’t aware. We see soContinue reading “Why Are Awareness Campaigns Important? Awareness is Especially Important for Lipedema!”
The 2023 Fat Disorders Resource Society Conference Did Not Disappoint – A Recap
Hi Friends! I’ve just returned from my second FDRS conference. This one was in Atlanta and had numerous patients, therapists, surgeons, clinicians and vendors in attendance. It’s a great event to learn about all the new research initiatives and outcomes related to fat disorders, of which lipedema is the largest group represented at the conference.Continue reading “The 2023 Fat Disorders Resource Society Conference Did Not Disappoint – A Recap”
Fresh for Spring! Lipedema Friendly Outfit Idea
HI friends! My mom snapped a pic of me the other day when I took her to a doctor’s appointment, wearing a real dress that I really ordered for myself. I’ve gotten a ton of compliments on this little outfit so I thought I’d share it. This is from a company I’ve been wearing aContinue reading “Fresh for Spring! Lipedema Friendly Outfit Idea”
I finally reviewed the Hip Hugger for the booty gap in all our jeans
Hi friends! A long time ago, in a galaxy far, far away, I bought a Hip Hugger device to test. This device is advertised as, ‘The no-buckle, no-bulk, no-front belt.” The packaging also says, “Bye bye peek-a-booty!” Cute. So I did a little test of this guy. Here’s my review. It was really hard toContinue reading “I finally reviewed the Hip Hugger for the booty gap in all our jeans”
Answer to an FAQ: How Long Can I Wear the Same Compression?
WARNING! These compression pants will self destruct in 3-2-1… Hi friends! As I was getting dressed this morning, I heard the dreaded sound of the “warning hole” being torn open in my Bioflect Capris. Darn it. And once the Warning Hole has opened up, I’m good for two more washes before, piece by piece, theyContinue reading “Answer to an FAQ: How Long Can I Wear the Same Compression?”
Why I Made a Lipedema Awareness Program for Girl Scouts – Early Treatment is Key
Hi friends, Did you know I have a badge program for lipedema awareness that can be used for Girl Scouts, Scouts, Campfire, etc.? This is so important, because if girls can figure out what’s going on with them, their future patients or friends early, they can begin conservative measures early. All this leads to theContinue reading “Why I Made a Lipedema Awareness Program for Girl Scouts – Early Treatment is Key”
I Accidentally Used the Weed Eater on my Own Leg in 1998. And So, a Picture Was Taken
Hi friends! If you’ve followed me for very long, you know that my husband (www.robohara.com) Rob documents Everything, including dumb incidents like the time I accidentally used the Weed Eater on my own leg. In fairness, I didn’t do it on purpose, but my finger hit the trigger while I was walking to a newContinue reading “I Accidentally Used the Weed Eater on my Own Leg in 1998. And So, a Picture Was Taken”
People are Funny. I’m Funny. I Show My Legs More than Ever Now that I Know I Have Lipedema. How about You?
Hi friends, I just had this odd little Friday thought. Over the years as my condition progressed and I could not figure out what was wrong, I began hiding my legs more and more. When I (through a very long process) determined I had lipedema and now I feel freer to show my legs moreContinue reading “People are Funny. I’m Funny. I Show My Legs More than Ever Now that I Know I Have Lipedema. How about You?”
My Review of the Jileon Extra Wide Calf Rain Boot. I Learned a TON of Design Hints from Looking at this Boot.
Hi friends! As the LegsLikeMine design and fit team, work with our footwear manufacturer, suppliers, and fit measurements, we continue to learn a lot about what design will work with our lipedema ladies’ feet, ankles and calves. We are putting the final touches on what materials will go for sampling and even selected the firstContinue reading “My Review of the Jileon Extra Wide Calf Rain Boot. I Learned a TON of Design Hints from Looking at this Boot.”
