Hi friends, As I prepare for Lipedema Awareness Month, I’ve been reviewing a document called the First Look Report from the Lipedema Foundation. These are findings that the LF discovered as they analyzed the Lipedema Registry Survey. The finding that continues to blow my mind is that women go on average 17 years with symptomsContinue reading “The 17-Year Delay: Shedding Light on the Diagnostic Odyssey of Lipedema Patients”
Tag Archives: compression
An Open Letter to All Medical School Deans and Curriculum Committees: Teach Lipedema
Dear Esteemed Deans, As leaders in shaping the future of healthcare, you hold the power to transform the lives of millions of women worldwide who are silently suffering from a condition that has long been overlooked and misunderstood – lipedema. Lipedema, a chronic disorder characterized by the abnormal accumulation of fat in the legs andContinue reading “An Open Letter to All Medical School Deans and Curriculum Committees: Teach Lipedema”
FAQ Answer – Compression 101: The Importance of Wearing Compression for Lipedema
Hi friends! As someone who has been living with lipedema for years and advocating for better awareness and understanding of this condition, I can’t stress enough the importance of wearing compression garments. Compression therapy is a crucial part of managing lipedema and can provide significant relief from the painful symptoms associated with this chronic condition.Continue reading “FAQ Answer – Compression 101: The Importance of Wearing Compression for Lipedema”
Dismissing Known Lipedema Symptoms as Obesity Violates the Hippocratic Oath
Hi friends, this post is intended to share with physicians and healthcare providers, whom you’ve worked with to get a lipedema diagnosis, and have been ignored or gaslighted, despite providing resources such as the Clinician’s Guide to Lipedema from the Lipedema Foundation. Best of luck to you! Remember if you aren’t being listened to especiallyContinue reading “Dismissing Known Lipedema Symptoms as Obesity Violates the Hippocratic Oath”
The Power of Advocacy: Uplifting the Lipedema Community
Hi friends! As you can tell, I’m gearing up for Lipedema Awareness Month, and I encourage you…ask you, to participate using your skills, interests, and reach. As someone living with lipedema, I know firsthand the challenges this chronic condition can bring. The physical and emotional impacts can be overwhelming, but there is strength in numbers.Continue reading “The Power of Advocacy: Uplifting the Lipedema Community”
Lipedema Friendly Outfits – Every Woman has Beautiful Shoulders, and Never Underestimate the Power of Red
Hi friends! I’ve been wanting to share a red dress post with you for a while and I finally found what I was looking for, after looking at SO many pictures of what Oprah wears. It turns out a lot of her formalwear that she wore when plus size involved off the shoulder designs. ItContinue reading “Lipedema Friendly Outfits – Every Woman has Beautiful Shoulders, and Never Underestimate the Power of Red”
What Kasi Does: Thriving with Lipedema. A Patient Rock Star Story Shared in a Pamphlet to Help YOU!
Hi friends! Take a look at this awesome pamphlet we’ve created for you all about conservative measures just one patient takes daily to manage her lipedema: Thriving with Lipedema_Pamphlet_final_10-20-2023 I feel so very fortunate to have the company and wisdom of Kasi Grosvenor, who is an absolute lipedema patient rock star, as a friend andContinue reading “What Kasi Does: Thriving with Lipedema. A Patient Rock Star Story Shared in a Pamphlet to Help YOU!”
Sharing with You! My Pool Side Cheat Sheet for Easy Lipedema Friendly Water Workouts
Hi friends! As I head over to Atlanta this weekend for the Lighthouse Lymphedema Network 25th annual meeting, I’m doing a little prep work. The day before I get there, the therapists will be doing an all-day pool session workshop with none other than the famed therapist Dorit Tidhar, who runs Aqua Lymphatic Therapy andContinue reading “Sharing with You! My Pool Side Cheat Sheet for Easy Lipedema Friendly Water Workouts”
Fall 2023 Lipedema Friendly Outfits – Date Night / World Domination Black Outfit
Hi Friends! I’m just going to say, I love this freaking outfit! Before I started wearing compression, I never would have worn a just-below-the-knee skirt and been happy about it. Now that I wear compression, it has opened up so many opportunities to try different lengths with more confidence. Let’s start at the bottom ofContinue reading “Fall 2023 Lipedema Friendly Outfits – Date Night / World Domination Black Outfit”
Compression Frenzy! I found Purple AND Navy Compression in big sizes!!!
Hi friends, I’m keeping this short so you can RUN to Amazon. Purple, Navy Blue and Gray Compression up to a 5X! I bought the purple and I own this brand in nude and black. I size up to a 5x (I wear a 24W), but it’s hard to find actual colors. Stop reading andContinue reading “Compression Frenzy! I found Purple AND Navy Compression in big sizes!!!”
