Well hi friends! Here’s a little update on the shoe making progress. The LegsLikeMine team has been working for two years now to build up to this point. Some of the big activities we’ve done over these two years: survey lipedema patients on their footwear challenges identify key requirements for our footwear: stability, comfort, support,Continue reading “LegsLikeMine Lipedema Friendly Shoes – Getting to the FUN Part Now!”
Tag Archives: lymphedema
Understanding Lipedema, Lymphedema, and Dercum’s Disease
Hi friends, I’ve noticed that a lot of people get these three diseases confused because they are so interrelated. I thought I’d do a post talking about their similarities and differences that we can refer to when FAQs come up. Take me, for example. I have stage III lipedema, which also involves lymphedema having developed. Continue reading “Understanding Lipedema, Lymphedema, and Dercum’s Disease”
The 17-Year Delay: Shedding Light on the Diagnostic Odyssey of Lipedema Patients
Hi friends, As I prepare for Lipedema Awareness Month, I’ve been reviewing a document called the First Look Report from the Lipedema Foundation. These are findings that the LF discovered as they analyzed the Lipedema Registry Survey. The finding that continues to blow my mind is that women go on average 17 years with symptomsContinue reading “The 17-Year Delay: Shedding Light on the Diagnostic Odyssey of Lipedema Patients”
An Open Letter to All Medical School Deans and Curriculum Committees: Teach Lipedema
Dear Esteemed Deans, As leaders in shaping the future of healthcare, you hold the power to transform the lives of millions of women worldwide who are silently suffering from a condition that has long been overlooked and misunderstood – lipedema. Lipedema, a chronic disorder characterized by the abnormal accumulation of fat in the legs andContinue reading “An Open Letter to All Medical School Deans and Curriculum Committees: Teach Lipedema”
Dismissing Known Lipedema Symptoms as Obesity Violates the Hippocratic Oath
Hi friends, this post is intended to share with physicians and healthcare providers, whom you’ve worked with to get a lipedema diagnosis, and have been ignored or gaslighted, despite providing resources such as the Clinician’s Guide to Lipedema from the Lipedema Foundation. Best of luck to you! Remember if you aren’t being listened to especiallyContinue reading “Dismissing Known Lipedema Symptoms as Obesity Violates the Hippocratic Oath”
The Power of Advocacy: Uplifting the Lipedema Community
Hi friends! As you can tell, I’m gearing up for Lipedema Awareness Month, and I encourage you…ask you, to participate using your skills, interests, and reach. As someone living with lipedema, I know firsthand the challenges this chronic condition can bring. The physical and emotional impacts can be overwhelming, but there is strength in numbers.Continue reading “The Power of Advocacy: Uplifting the Lipedema Community”
Did you Retire Early due to Lipedema, mobility, fatigue? Remote Work Can Reopen the Door
Hi friends! Lipedema can be a thief. It can steal your mobility, your energy, and sometimes, it can even steal your career. For many women, the relentless pain, fatigue and discomfort associated with lipedema make traditional (and stressful) work environments unbearable, forcing early retirement. But what if there was a way to reclaim your professionalContinue reading “Did you Retire Early due to Lipedema, mobility, fatigue? Remote Work Can Reopen the Door”
Do YOU use a Pneumatic Compression Device for Lipedema and Lymphedema?
Hi friends! If you follow me, you already know that lipedema is a chronic condition that causes abnormal fat accumulation, primarily in the legs, but sometimes also in the arms. While the exact cause remains unknown, it’s thought to be linked to a combination of hormonal, genetic, and lifestyle factors. Lipedema can lead to pain,Continue reading “Do YOU use a Pneumatic Compression Device for Lipedema and Lymphedema?”
Lipedema Friendly Outfits – Every Woman has Beautiful Shoulders, and Never Underestimate the Power of Red
Hi friends! I’ve been wanting to share a red dress post with you for a while and I finally found what I was looking for, after looking at SO many pictures of what Oprah wears. It turns out a lot of her formalwear that she wore when plus size involved off the shoulder designs. ItContinue reading “Lipedema Friendly Outfits – Every Woman has Beautiful Shoulders, and Never Underestimate the Power of Red”
Blooming Where You’re Planted: Making the Most of Life When Bedbound
Hi friends! We have so many women in our community who are in later stage four of lipedema and mobility has become so difficult. In fact, one study shows that 63% of women with lipedema have some form of mobility issue. I have an impossible soft spot for our stage IV ladies who are oftentimesContinue reading “Blooming Where You’re Planted: Making the Most of Life When Bedbound”
